I am an attorney and work at the Florida First District Court of Appeal. My husband Dean is also an attorney; he has a solo practice and also teaches at Flagler College. We met in Nashville, Tennessee, when we were both attending college. We are so grateful for the information and resources PPMD provides -- we try to help this organization as much as we can.
About my family:
We have five children: Meredith (12), Henry (10), Thomas (6), Jack (3), and Madeleine (9 months). Henry has DMD; he was diagnosed in June 2002, when he was 18 months old. We are thankful to have very supportive grandparents -- my mom and step-father -- here in town.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416
hi, just wanted to give everyone an update on Christian. His appt for the pulmo for april 9th was cancelled. For spring break we didn't so much becuase he was complaining about headaches. We had a blood gas test done and his co2 levels have become somewhat elevated so will be making a trip to gainesville for a sleep study on may 13th