"I agree. No need to worry. We've done this numerous times and just give him his deflaz later in the day and a little later than normal on the next day to spread it out a little. We haven't noticed any problems with…"
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Billy Ray
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Missed a dose
Started this discussion. Last reply by Keith & Jill VE Sep 24, 2011. 2 Replies 0 Favorites
Hey eveybody my son takes deflazacort alternates 15 mg and 7.5 mg daily. I missed his dose this morning and did nt realize it till sometime later after my son is three hours with his dad going to a…Continue
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"We have had this happen when Xavier had a stomach bug. He got his full dose at 7pm (normally takes at 7am) and our doctor said we could go ahead and give him his full dose the next morning at the usual time. I will say he slept in the…"
Missed a dose
Hey eveybody my son takes deflazacort alternates 15 mg and 7.5 mg daily. I missed his dose this morning and did nt realize it till sometime later after my son is three hours with his dad going to a colege football game! I'm super stressing because I wont be able to give his today's dose until late tonight! If I do that is it going to hurt him? Also when should he take tomorrows dose?I've searched the internet, tried to call CInci Childrens and got nowhere!Anybody out there got any…See More
Louisiana and Mississippi Families
A group for families in Louisiana and Mississippi. If we need to divide up we can!!See More
Profile Information
- About me:
- I am a highschool English teacher. I am the Choir Director at my church. In December of 2009 our son Charlie was diagnosed with Duchenne. I was a devasting experience for us. Since then, we have met many people that have been a great help to us. I pray every day for a cure, and in the mean time I trust my Father's will for our lives!
- About my family:
- I have three children (Ellie, Charlie, and Amelia Grace) My wife, Summer, is a home health nurse.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Charlie Ray
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City:
- Rolling Fork, MS
Comment Wall (1 comment)
- At 10:22am on March 4, 2011,
celeste and carey said…
So sorry for not responding sooner. I need an iphone app for ppmd. :-)
I regret this diagnosis for your family, but am very pleased that we've found support in MS friends like the AWESOME Malone family. PPMD is awesome! Plus the fact you are a MSU fan makes it even sweeter.
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