My husband, Tony and I have been married for 25 years and we have been active with PPMD for 16 years now. We both work at a private school.
About my family:
We have 3 beautiful children. Robbie is 7 years old and loves trains and jets. Anthony (DMD) is 18 years old and is a high honor student in high school. Our daughter, Jamie is 20 years old and is in college.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
See the slideshow below for our son, Anthony's progression with DMD from birth to age 16 (one picture per year) He is now 16 years old and as happy as always.
The colleges have a Disabilities office but they don't provide funding for personnel aid. I have heard really good things about Edinbourgh College in PA. This college seems to be able to handle all types of disabilities. We did the financial aid forms and are seeking out scholarships now. Keeping out fingers crossed.
Hi Bev, Thank you for your note. Can you believe that our sons are going off to College. Truly great accomplishments for our boys. Yes, I think Jon would also like to stay in the Dorm, but did express some nervousness about needing someone to help him. So, I think it is little releived that his is living at home. Love the pics of you guys. You all look great!
Beverly, thank you so much for your note. What a kind offer. I would love to take you up on it. I enjoyed the photos of your family. They are beautiful. I will send you a note in mid-Sept once school gets underway and we can arrange a get-together. I spend a lot of time in Gladstone. My two youngest attend pre-school at the Wellspring School. It will be my pleasure to meet you and I look forward to it. Enjoy your summer. Carolyn
Thank you for the document you posted with the anesthetics to be aware of. My son Jonathan (17) has to have a procedure for kidney stones and I printed out your list to take with us to his pre-op appointment and pre-surgery check in at the hospital. Again Thanks!!!!
I enjoyed your slideshow. When did Anthony get to meet Emeril. Adam would be jealous. He loves the food network. In fact made most of Christmas Dinner based on Emeril's recipes he learned while bored at CHOP during one of our PTC visits.
Your family looks amazing, and Anthony is leading a wonderful and worthwhile life thanks to his own will and the dedication of your family. That's all any of us can hope for, that our lives are meaningful and fulfilling, how ever long we are here. My little grandson Skyler is just 5 and hopefully he will have a chance to experience as much as your son has. Sincerely, Barbara