I am new to this site as I am from the UK. I am mom to George, age 5, with DMD.
I have some amazing friends who are cycling 20,000 miles for Duchenne. Starting in Halifax and cycling via Augusta and Rochester, Buffalo, Chicago, Mineapolis...Vancouver down to SF, LA and then all the way down to Argentina.
Please join the group "Cycle the Americas". I think they will be cycling near you - if are interested in finding out more or meeting them on their journey (they really want to meet local communities and DMD families) please get in touch.
I spend every spare second campaigning for research and awareness of DMD - would be great to have you on board with this adventure!
Hi Anneke! I think we met at the MDA seminar a couple months ago. It's good to see you made it over here. I hope you and your husband are doing ok. If you still have my email address and would like to get together sometime let me know, otherwise I can send it to you again.
Welcome to PPMD, this is the best DMD site I know of for any sort of advice or support! I have met many wonderful and helpful and sympathetic people here. I have been a member since my 4 year old son was diagnosed in 2006 - they helped me through my darkest days!
Anyway, just wanted to say hi and welcome and that you have a beautiful son! I look forward to getting to know you!