I haven't seen this on PPMD yet so I thought I'd share.Pfizer has extended the age range for their Myostatin Inhibitor trial. Originally it was, if I remember correctly, 6<10 years of age. They…Continue
Researchers found another function that dystrophin provides in muscle cells. The mini-dystrophin doesn't seem to provide that function.…Continue
Saw this link on CBC (Canadian news site):http://www.cbc.ca/news/health/crispr-summit-1.3349192The tool was adapted from one…Continue
Our son Hayden is just finishing up his first year of school. The teachers and aids, whom we really like, have suggested we may want to consider keeping him in pre-K for one more year because of…Continue
Looks like we are just going to get into the Pfizer Myostatin Inhibitor trials with Hayden. He turns 10 in just over a month and we're going for screening next week to Vancouver. We were really starting to wonder if he was going to get in, but the folks at Vancouver pushed and unfortunately had to bump another boy that was scheduled to be the first at that location. The other boy will still get in on the trial, but Hayden would have been excluded the day he turned 10 so they had to move…Continue
So this week, one of our biggest hopes came true. About a year ago, I left my job to take a consulting position and we moved to British Columbia. We weren't particularly happy with the services we were receiving in Saskatchewan and decided if we could, we'd move to be closer to one of the Children's hospitals in Canada. We didn't want to move East to be near Toronto, so BC was the only other choice. There certainly were some stressful times during the move and since, and it wasn't easy…Continue
So I'm sure there are at least a few folks from PPMD that also visit Reddit.
Reddit is donating about $850,000 evenly split among 10 charities. PPMD is on the list but isn't getting much attention. If you are a user, you can go here:
And click the 'Vote For This Charity' button. It wouldn't hurt to vote up the submission which…Continue
Hayden (our oldest) is in Kindergarten and I wasn't too surprised when we gave me a card this morning they made in class. What did surprise me was the poem included in it, and how I couldn't hold back a few tears after reading it. It hit a little too close to home and made me thing about how important it is to slow down once in a while and enjoy the time we have.
"Walk a little slower Daddy,"
said a child so small,
"I'm following in your footsteps…