I am a mother of 3 boys with twins who are affected by DMD.
About my family:
My husband and I both work full time. We recently have started our own nonprofit organization, Two Smiles One Hope Foundation, to raise money for other nonprofits (PPMD, Charley's Fund, etc) who have already committed themselves to help end Duchenne. It's more work than I anticipated, but worth it. Please visit us at www.twosmilesonehope.com to learn more.
Name(s) of child(ren)/individual(s) with Duchenne:
Jack and Nolan
Age(s) of child(ren)/individual(s) with Duchenne:
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Hi Alison: I just wanted to introduce myself and show support for your organization. I recently saw your foundation logo, and it reminded me so much of my own two grandsons. My name is Terry Porcaro, I am a member of PPMD and the grandmother of two beautiful little boys also diagnosed with DMD. Cole, age 7 ½ and Jack age 6. My grandsons live in North Haledon, NJ with their mom and dad, Lisa and Joe Nilsson. If you friend me on facebook, you can see pictures of my two little guys. I’m listed on facebook as Theresa Bizzaro-Porcaro. With warm regards, Terry
I am so glad I got to meet you! But,I am upset that we never got to sit down and talk! I definately want to learn more about what ya'll are doing and try to get something going myself. When you have time (which I know is not often with work and kiddos!) I will give you my number or get yours so we can talk!