I am mother of 3, Jayda, Sam, and Logan. I'm currently in school for nursing.
About my family:
I am a carrier of DMD, my uncle had DMD. So from the start I already knew... Sam was diagnosed with DMD in August of 2008. Logan was diagnosed in April of 2014. Still very hard for my family to talk about it, it will able to connect with others that are going through what I am going through and will be going through.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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Welcome to Washington! I would love to get together and meet you. I am very surprised to hear that Sam has the same deletion as Colin. You are the first person I have heard of that shares the same deletion. It will be nice to have someone to compare notes with.
I hope you are having good luck with this area. My son Colin was diagnosed two years ago. It has been hard, but I have been lucky to meet some great people in the area that are also dealing with Duchenne.