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Aiede M. Female Smithfield, NC United States: Favorite

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Name(s) of child(ren)/individual(s) with Duchenne:: Abdulah Shahadeh

Age(s) of child(ren)/individual(s) with Duchenne:: 4-6

City:: Smithfield, NC

My name is Aiede andI have 2 children. My boy who is 6 and my girl who is 4. Abdulah was diagnosed with DMD when he was 4, and has been on Prednisone ever since he turned 5 yrs old. He has a deletion on exon 50-56. Everyday I pray for a cure to come soon.

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At 12:09pm on March 16, 2012, Sherie Hinkle said…: Hi Aiede- Our son is almost 5 and we are contemplating whether to start steroids or not before he goes to Kindergarten. How has your son responded to the medication? We are concerned about an attitude change in our sweet tempered son.

At 5:30pm on March 28, 2011, kimmy watters said…: aide i truly belive in my heart that any day now we will have a cure.kimmy watters

At 2:27pm on October 7, 2009, Windy Jackerson said…: I sure wish very soon. Hopefully that day is near. It seems as though they are close! Keep positive!