PPMD's Favorites
October 2011
September 2011
The annual, Fall United Way campaigns are getting underway throughout the country. Last year many…
9.24.11
This month is our month. As a community, September has come to mean the start of the school year, vacations are over, sleeves are rolled…
Blog Word Association 3 FavoritesAugust 2011
Next to Jenny and Kris’ wedding, this wedding of Johnny and Julie was perfect in every way. It was X-cellent because it was held at Xavier University, Bellarmine Chapel. Johnny had called me…
Blog Johnny and Julie’s X-Cellent Wedding 9 Favorites PPMD Provides Travel Grant for Clinical TrialBy now you have probably seen the latest news from our friends…
Blog PPMD Provides Travel Grant for Clinical Trial 1 Favorite Holbrook Determined at Mid Ohio Rounds 7&8 PiLexington, OH – Shea Holbrook returned to the Pirelli World Challenge Touring Car Championships for the second half of the season, rounds 7 and 8 at Mid Ohio Grand Prix in her No. 67…
Blog Holbrook Determined at Mid Ohio Rounds 7&8 Pi 2 Favorites Join DuchenneConnect's Clinic Services Resou… What do you like about the healthcare your child is receiving at clinic? What do you NOT like about the healthcare your child is receiving at clinic? WE WANT TO KNOW! Please join the Clinic Servic… Discussion Join DuchenneConnect's Clinic Services Resou… 1 FavoriteJuly 2011
June 2011
When the word Duchenne enters our home, we are often stuck in the mud of negativity. It feels like the diagnosis removes all of the hopes and dreams we had attached to our son’s life. We search…
Blog Success Factors - The Documentary (Amsterdam, 5 Favorites Wednesday Night WiningOn June 1, I joined the WNW, the launch of Inspired Wining and it was amazing! But that’s what happens with women, steel magnolias all…
Blog Wednesday Night Wining 2 FavoritesMay 2011
This message is posted to help the community understand the diagnostic odyssey faced by Ryan B, a young man who was diagnosed with muscular dystrophy long before genetic testing was reliable…
Blog DuchenneConnect at Work: Helping Families Pur 3 Favorites Cab rideGot in the cab at JFK yesterday, tossed my bags at the Indian driver with a few words about the address, while in the middle of a conversation with Kimberly to catch up on stuff. While dodging…
Blog Cab ride 12 FavoritesApril 2011
Hello,
I am new to this blog. My name is Andrew…
Blog Hello, I am new to this blog. My name is An… 1 FavoriteMarch 2011
I met Isa and Doru Tudorache several years ago when their son Peter was…
Blog Romania, March 2011 7 Favorites Genetic Diseases of Children Last year, Dr. Lawrence Sturman – Director of the Wadsworth Center, New York State Department of Health – decided it was time to organize a meeting focused on Genetic Diseases of Children. He… Blog Genetic Diseases of Children 7 FavoritesFebruary 2011
Two weeks ago, I was invited to present the story of Duchenne muscular dystrophy to Acceleron’s partner, Shire Pharmaceuticals. I walked in the door to find myself surrounded by the word “BRAVE.” …
Blog Marathons...of a different sort. 10 Favorites Final Update from PPMD's One Voice Advocacy SThe third panel for the One Voice Summit, moderated by Debra Lapin, focused specifically on the accomplishments and possible gaps in the MDCC Action Plan. Members of industry and…
Blog Final Update from PPMD's One Voice Advocacy S 1 Favorite One Voice to End Duchenne
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