Brian Denger's Favorites
February 2014
Sarepta’s 120 week stability data on both…
Blog Finally, Some Good News! 2 FavoritesDecember 2013
Why the December FDA Policy Forum is important to every Duchenne family – from rare mutations to Exon 51
Guest post Lance Hester. Lance is a…
Blog Together We Can Make a Difference 1 FavoriteMarch 2013
The Muscular Dystrophy Association, Parent Project Muscular Dystrophy and the Foundation to Eradicate Duchenne have called on the U.S. Senate and the U.S. House of Representatives to reauthorize…
Blog Advocates in Muscular Dystrophy Community Pre 1 FavoriteSeptember 2012
Parents of children with Duchenne and Becker muscular dystrophy often…
With Congress decamping from Washington and not expected to return…
PPMD Note: Mary Connolly recently joined PPMD as Vice President of…
July 2012
The clinical trial process is complicated and confusing. At this…
Blog My Voice: Jack and Nolan Willis, 10 years old 1 FavoriteJune 2012
March 2012
We are coming to you today to ask that you devote your…
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