Joel Rhodes's Comments

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At 10:55pm on April 16, 2009, Julie Garcia said…
Joel,

I hope you got Brian Tseng's contact information. He is another resource for steriod information and a good person!
At 10:55pm on April 16, 2009, Julie Garcia said…
Thanks Joel!

Looking forward to meeting you in person too!

Take care
At 2:23pm on April 15, 2009, Julie Garcia said…
Hi Joel,

Did not know you were on facebook. Good to connect! I will be dropping Nick off at 7:45 am on Friday and then I should be able to scoot over to Shriners. I think we will recognize each other from our pictures...I hope. My cell is 916 317-9280
At 12:48am on April 15, 2009, Julie Garcia said…
Joel,

That is great news! Thanks for making the call. I am off work all this week. What time will you be at Shriners?

I would love to meet you guys.

Julie
At 6:50pm on April 14, 2009, Julie Garcia said…
Hi Joel!

I just left the message below on Ruth's web page and wanted to make sure you had this same message. Please see below

I just wanted to get the word to you and Joel that I believe I made contact with your House member's Merced office to request a sign on for the PPMD letter we are circulating with the House members. My Rep, Doris Matsui is co-sponsoring the letter and can be contacted by your member to sign on. If your member is Dennis Cardoza please call tomorrow and let Stacie in the Merced office know you wish to have his support on this important letter. Stacie can be reached at 209 383 4455. I sent an e-mail to a friend at work who forwarded my e-mail to Stacie. The more calls the better and most likely he will sign. We only have until this Friday, 4/17 for final signatures.

I will let Joel know and I will forward my e-mail to the @tds.net e-mail.

I hope all is well.

Take care,

Julie
At 7:07pm on February 16, 2009, Gregory said…
Thanks for joining my group! Looking forward in getting to know everyone.
At 6:47pm on February 16, 2009, Gregory said…
Please join our San Francisco Bay Area Families group.

Greg
At 7:06pm on October 29, 2008, Kim Maddux said…
Hi - Thanks for adding. Yes, Antioch is not that far from here. I have many friends and former coworkers from there. Your son is adorable. Alex is still doing pretty well. We got our diagnosis 4 years ago. Take care.
At 8:20pm on September 6, 2008, Julie said…
Hey Joel

What was the name of the book you talked to us about at the poker run Aug 23, 2008. We can't remember the title.
Thanks
Julie Malecha
At 1:53pm on September 5, 2008, Julie said…
Joel
It was so nice to meet you and your family. I hope the training for next years half marathon is going good. Hope you are all well
Julie Malecha
At 11:34am on August 28, 2008, Ruth Rhodes said…
There is a problem. The photo upload requires Java which my windows live is blocking. A problem you can assist me with
At 6:35pm on July 24, 2008, Julie Garcia said…
Joel,

Just a thought but when you get a chance look up your House members name and call the local office. Let them know you really want their support for the MD Care re-authorization bill, H.R. 5265. You can ask to know where there Town meetings are so you can talk in person.

Just a thought. A phone call always brings it to their immediate attention.

Let me know when you will be coming to Shriners and if you would like to get together.

Take care,

Julie
At 12:52pm on July 22, 2008, Julie Garcia said…
Joel,

Yes, I knew your name and your son's name rang a bell. Los Banos looked familiar too.

So good to hear from you!

Please let me know about your congress person so we can work to gain the support. I just got back from the conference and I am taking today off work and will get back into things for work tomorrow.

I hope all is well.

So good to hear from you!

Julie
At 9:49am on July 22, 2008, Julie Garcia said…
Hi!

Me again, I really needed to leave a note about advocacy. It is important because it is a critical part for us to get our children the help they need.

When you get a chance look at the advocacy section under Discussion forum. We need help to get Senators and House members to support the MD Care re-authorization act. It is the one way we can help our children and have our voices heard. Both CA Senators have signed on. See if your House member supports it. If they do not, we can help you to try to secure their support. Just let us know.

Take care,

Julie
At 9:44am on July 22, 2008, Julie Garcia said…
Joel,

Welcome to the new PPMD site. I am sorry you are here because your child has dmd. This is a very good community to be connected to for information and support.

My son is 16 years old with dmd.

Just a quick tip. You can apply for a medical baseline with your utility company. You request the application, they send it to you, your child's doctor signs it and you mail it in. When it is processed you are then given a medical baseline. Every little bit does help in saving money.

We are all here to help one another.

Take care,

Julie

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