Hi Kathleen: I happened upon your page while looking through NJ members. Your son, Christian reminds me so much of my grandson Cole, who is 5 1/2 year old, especially the picture of your son playing the guitar. My grandson makes that same face and has the same stance. Your pictures are adorable. (Also, your dog is the same kind of dog we have.) Such similarities that I had to remark on them. Terry Porcaro (Grandmother to Cole, 5 and Jack 4, both with DMD)
How was your visit to Dr. Wong? We met your family on Wednesday and saw you alittle bit on Thursday. Austin's visit went well. He is showing a little bit of weakness in his legs and his hips are getting tighter. The physical therapist said I needed to do more hip stretching. Other than that he is doing well for his age.
Thanks so much for your note. I just looked at your photos on your page and they are beautiful! My son with DMD is also 6. We don't get to MO very often but will surely call you when we do! Thanks for connecting with me. Don't you just love PPMD?!
It is a small world, I was talking with Nick Petronzi today and he mentioned your husbands name. I told him that you were the first person associated with PPMD that I spoke to. I am glad you are coming and look forward to meeting all of you.
See you soon
Hi Kathleen: Thank you for connecting with me. I don't know if my daugther met you at the conferences last year or not, but I will most definitely tell her to contact you. I'm sure she would love to get together with other families in N.J. Your son is adorable. I noticed in one picture he was riding a horse. Does he go for hippotherapy, and if so, where do you take him? Terry Porcaro (Cole and Jack's Grandma)
Anything that I can do to help and support you and your family, let me know. Keep the faith and be strong. I see your little one is an Argentina soccer fan. So are we, my husband's from Argentina. Take care of you.
The site is wonderful, I'll loving it also.
We would love to get together. Christian talks about seeing the boys all the time. I will e-mail you soon. Christian is out of school on 6/20.
Great to hear from you.
Talk to you soon,
Welcome. the site is very cool. the discussion forum needs tweaking but it is great to see everyones pictures and videos. can't wait to see you guys sunday, it is all Danny talks about. Is Christian coming today???