Hi Colin (and family)
Just wanted to send a message to say congratulations, so glad the news was all good, and can't wait to see the photos of the newest member of the family (and that includes ultrasounds too - we're all in this for the long haul!)
Was going to send a message sooner, but figured it would be a testing time for all of you, and I had a feeling you would share the great news once you had the test results (and who wouldn't)
Have a little parcel here ready to go, all I need is your address.
Yes, I remember you at the conference. I'm so happy about your news. Our youngest son is such a joy to everyone in our family and he such a blessing. We think he is going to "mayor" one day because he is so friendly and outgoing-always introducing his older brother, Anthony to anyone he meets. He says Anthony's muscles "are not turned on" as he climbs on him and sits to start talking. This also gets Anthony involved in conversationshe would otherwise want to avoid-but allows him to be social and open up to people. Anyone best wishes for your family.
I read your lovely comment to Jessica. What a great support for her. Congratulations on "your" pregnancy! How wonderful and what a blessing to have another child to love and to bring joy to your family! God truly does work in mysterious ways, doesn't he? Your children are absolutely beautiful--all of them are just stunning! Amazing shot of your son sitting in the window frame with the rainbow beside him! Are you originally from South Africa or do you hail from elsewhere? I have never been there but it seems like a beautiful place to be. Your family seems to be full of life and smiles. Ahhh, families, what on earth would we ever do or be without them??!!
Thanks for letting me use pictures of the boys! I will post the slide show when I am finished for everyone to see and share. You are so right about these kids....God has blessed them all with beauty! Every child I see on here I am more and more amazed beacause they are soo adorable...including yours!!! Take care!
Wow sounds like you have alot going on. I hope the test has good results. Yes I noticed the J names in common. My daughter didn't find out she was a carrier until the end of December, which just so happened to be only 2 weeks after her brother died. She hasn't dealth with it very well. So I would recommend you let Jessie, make the decision when she finds out. How is medical care in SA? Just wondering if you have to fight for everything over there, like in Texas.
What is your belief system anyway?
Take care and please keep in touch.
No am not going to Philly. I have not been to a PPMD conference since 1999. Helen always speaks there, our PT and Educatinoal advisor. She is the best for walking the talk, no two bones about that. I have a 20yr old who came home from the nightclubs at 5am this morning, slightly tipsy and in the company of youths his own age, a girl's kiss lingering on his cheek - this is testiment to Helen as he is physically virtually quadruplegic in function, with no nocturnal ventilation, no surgeries, no turned feet, and a normal 55% heart function.
PPA is still 100% voluntary but even with a salary on offer this year we are so far unable to find the right marketing person in Sydney to actualize our new campaign idea.
I truly hope the CVS is without angst and if it is, you can only choose the right thing for everyone.
So, you've really left the dark side? ;-) PP is the one true thing, the one constant in a world of BS and false promises and I suppose will remain that way for me with people like Pat, Elizabeth, Filippo, Nick et al at the core of it. The frustrating thing for me in Oz, is our low profile, how silently our boys slip away and nobody cares, how little media or political attention PPA has been able to inspire and the corporate sector too, moves so slowly with their support that without a handful of grants for medical equipment each year and without our wonderful national conferences, our impotence in so far as being able to support Australian scientists would be a source of shame...as Pat says, "Hope is a good thing"...and one day one of our ideas or supporters will have an impact - for me it is not a matter of hanging in there anymore, but taking a risk to boom or bust. Let's know if we can help in anyway. You're welcome to use our conference room anytime for your PP meetings etc, just let me know and I'll make you an administrator. Deb