Jacobs Mommom's Comments

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At 2:21pm on February 8, 2015, danielle said…

Well again dmd is trying to take our spirits. I found out this week my jacob is losing lung function his lung arent even working a 100% if u add them together. He is inhaling at 60% and exhaling 35%. How is this even possible? Count yourself lucky that ur jacob is still getting around good and all. It seems like once we think we are ahead of whats happening we fall about a mile back. He has lost hand strength and can barely write now. Hes so weak i dont know how he does this bc it is killing me just as fast to watch and try to help.

At 5:38pm on January 25, 2015, danielle said…

Well my jacob is only 9 and he cant even walk now. He can take maybe 2 steps now. We use the doctors at musc here in charleston.

At 11:13pm on January 24, 2015, danielle said…

Its seems both of our jacobs are 9. How is ur jacob?  Is he still walking or is he in a chair.

At 9:36pm on December 13, 2013, Sarah Burgess-Bembnowski said…

<3

At 4:32pm on February 29, 2012, Christine Davies said…

No - it's one of all three of us with a dolphin at Discovery cove! x

At 1:25pm on February 29, 2012, Christine Davies said…

Hi - can't find you, so please find me and we'll chat/share stories/ what ever! x

At 1:23pm on February 29, 2012, Christine Davies said…

Hi Jacob's Mommom - I have had a look but can't find you - please find me and we'll chat and share news, compare notes, whatever! x

At 10:28am on February 29, 2012, Christine Davies said…

Hi Jacobs,  Thanks for recommending a Mum in America, I'll see what comes of it - however I am fed up with "internet" friends and need to connect with the real world!  Facebook is taking over every bodies lives here in the UK so not many people come on here any more - your only the third in 9 months!!!  I know of Danielle but have yet to have contact with Lorraine.  Thanks for the info and I wish you well - C xXx

At 4:45pm on February 2, 2012, Laurie Barton said…

Hi Donna,

We moved back to California last February.  We hit the road on Valentine's Day and drove so we could keep ahead of the storms.  What an experience with 2 dogs, a cat, a rabbit, 3 wheelchairs, 2 shower chairs and 2 hoyer lifts in our 2 vans.  Thought we would get stranded by a snow storm in Flagstaff, but found the adrenaline to push on through to Kingman, AZ  and the guys had their first In-n-Out Burger in 4 years.  Yum. Checked out about 80 houses before I found one that had enough space to modify a bathroom so there was enough room for the accessible bathroom.

Hope you and Jacob are well.  The horseback riding photos are great!!!

Laurie

At 9:37pm on November 20, 2011, Coco Henry said…

was nice to hear from you.   I sure wish I had heard from you sooner.  I am sad to say that Dennis went to live with Jesus in heaven on June 27.  He died at home and I was not prepared for it. He had not been feeling well and I took him to his doctor and also called his cardiologist .  No specific co's, just not himself.  It was aweful.  I wish now I would not have took his doctors word but went with my gut feeling that something was not right.  Although Dennis only lived with us 18 months, he was our family's world.  Every day revolved around him.

At 1:21pm on November 10, 2011, Pat chipman said…

hey Donna - christopher is doing well...stubborn which is working well for him :)  how is Jacob?  have not really been on the website much as i am really sure how to get around on everything :)  was that you from berk?

At 10:33pm on November 9, 2011, John C. Corrado said…

Hi Jacobs Mommom,

 

Thanks for sending me a note.  I'm not aware of any family in the Lansdale area...but there's no doubt a relation.  I'd recenlty been made aware that my father, from MA, used to drive his mother to the Lansdale area fairly regularly. I'm trying to learn more about that and will keep you posted if I establish a connection.

We've been in PA for 9 years now but the balance of my family are all up in MA.

At 3:46pm on April 25, 2011, Amy Aikins said…
Nice to meet you.
At 12:56pm on August 1, 2010, David G Evans said…
Hi Jacobs Mom mom

Hi this is David Evans

I was wondering if we could get together sometime, maybe soon
At 3:21pm on July 28, 2010, David G Evans said…
Hi Jacobs Mom mom

Hi this is David Evans

I was wondering if we could get together sometime. I thought maybe we could meet at a park. My phone number is 610-693-6813.
At 11:43am on July 6, 2010, David G Evans said…
Hi Jacob

Hi this is David

I was wondering if we could get together sometime, maybe soon.
At 10:15am on June 15, 2010, David G Evans said…
Hi Jacob

my phone number is (610)-693-6813
At 12:17pm on June 13, 2010, David G Evans said…
Hi Jacob

Hi this is David i got your message. You are about an hour and a half away from were i live.
At 10:02am on February 16, 2010, Jacobs Mommom said…
Are you going to DC this weekend? I'm going but can only be there for Sunday and Monday because my boss sprung it on me last week that he is going to FL on Tuesday!
At 12:30pm on February 12, 2010, Ofelia Marin said…
I feel the same way. We are closer to clinical trials but NOT to helping the boys. Even if they participate in the trials they might be in the placebo group or low dose group and that would not help at all... not to mention that these are safety trials and still do not have approval to start.

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