Jessica Stevens's Comments

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At 2:09am on January 4, 2018, Margarita Yashchenko said…

Hello, Jessika! I wrote to you the letter to your email.

At 12:53pm on December 10, 2017, Margarita Yashchenko said…

My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the age of 6.5.  In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such asstretching) every day. For 2 years we have been able to stop the disease. But last 2 years my son fells woster than it was early. I would like to communicate with the American parents and doctors who probably know more  about new  medicines or methods for treating this condition. My email my-science@ukr.net. If you have a free time write me on my email I wiil wait. 

At 6:28am on March 31, 2016, Jay Griffin said…
Jessica I am a dad who is having a hard time as well. I would love to chat about our feelings and concerns about our boys
At 11:37am on February 8, 2016,
Staff
PPMD
said…

Welcome Jessica...we're glad you found PPMD. Have you explored the "New Diagnosis" section of our website? That is a good starting point for information: http://www.parentprojectmd.org/site/PageServer?pagename=Understand_diagnosis

Please don't hesitate to contact us by phone, email, or message if you have any questions regarding care, research, genetic testing results, etc. We can connect you with the appropriate staff member who can help -- 800-714-5437 -- community@parentprojectmd.org


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