Danielle's Comments

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At 8:08pm on November 14, 2015, danielle said…
I know it has been a while Jacob had the spinal fusion this summer. He is in constant pain now. Still losing muscles rapidly so I'm still at a loss.
At 8:35am on January 26, 2015, Jacobs Mommom said…

I'm so sorry to hear that.  Duchenne manages to break a little piece of our hearts everyday and it hurts so much to see our boys having to deal with this:(

At 11:29am on March 5, 2013, Susanne said…
Hi Danielle. Give my Jacob a big hug. I love you all
At 6:28pm on January 30, 2013, kimmy watters said…

 hey danielle just want just to touch base how are doing heard that there a big strom today,kimmy

At 9:02pm on January 29, 2013, kimmy watters said…

 that awsome how was your day, my jake loves mario  brothers game. does yours.kimmy

At 6:32pm on January 29, 2013, kimmy watters said…

 hey danielle i just love the picture, of jacob how was your day today the  park is so beautiful is jake is able to walk and out side much.kimmy

At 7:20pm on January 28, 2013, kimmy watters said…

 yes  how is misty vanderweele  how is doing, we have lovely summer it the only time we see the sun and its get very warm. so mom and i are out side every day. oregon has better beaches  then we do. but we get the most  awsome fish  salmon omg it is to die for . the house   we live in been in the family for 50 years, and some one has live here for 72 years. its old and gets very cold. kimmy i send you my email with the send message.

At 6:50pm on January 28, 2013, kimmy watters said…

 yes danielle i had fablous day, you know i choose to be a happy  .   i was having  issue  with sinus. its cold a damp here  am great flu that it has warm up bit.  how is your jacob  doing is still  having issue with his heart.  my heart is just so sad about misty.  what  about you and your jake do for fun . it is very beautiful where you are i saw some picture of sc. did you get any damage  with the stroms kimmy

At 2:17pm on January 27, 2013, kimmy watters said…

 i am sorry that the kids tease him in school, its sad in today world that kids are so mean, does jacob have many friends,. i tease to and belive or not there are people who do not like me. i just ingorne  them. the bully are angry or they are hurting  .   my buddy jake is my hero and inspiration all the boys who have duchenne are it makes me feel great ful for the little things .kimmy

At 1:02pm on January 27, 2013, kimmy watters said…

 daneielle i love the picture of jacob, how is coping with his challenge, does he enjoy   car racing like tony stwert  sorry  spelling not my cup of tea. how jacob doing in school   is he enjoying it. taking a  break today  watching  foot ball at four. i live in the seattle area,its beautiful my wonderful mom just turn 70 enjoying the time we have. i plain on getting out of my commfort zone  will doing hike up  mt rainer . have you ever been to washingtion  state.  kimmy 

At 10:17pm on January 26, 2013, kimmy watters said…

 hey danielle h am glad things are going well, i to  felt guilty about  mindy jaocb  at first and then it was for a reason that went through made me stronger, your jake is so handsome. has the weather been cold enough for you,  has the cold made jacob  joints ache .rember to take time to breath , and you have support form all of us. one of my specail time is in the mooring  yes am coffe  drinker can not live with out it. kimmy

At 10:30pm on January 21, 2013, Jolie Thomas said…

he is doing well. I am keeping him home from school until the flu has died down. thanks for asking.

At 11:27am on May 8, 2012, Tammy said…

Thanks so much Danielle.  Jacob is such a handsome little man!

At 4:59pm on May 7, 2012, christopher lundy said…
Yes
At 1:57am on May 7, 2012, wainaina muiruri said…

Hi Danielle,welcome to PPMD,

Hope you are well.I am picking a wheel chair for my 8yrs old boy today and i sure can identify with how you feel right now coz i I am feeling really down.This step is reminding me cruelly that i can not help my son now when he needs me most;and with all the faith that i see in his eyes daily that Daddy will make everything be alright for him.I feel..i don't even what to say.Bless and be strong. 

At 10:30am on March 26, 2012,
Staff
PPMD
said…

Welcome Danielle- We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

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