PPMD Community

Danielle's Comments

At 7:36pm on January 3, 2013, kimmy watters said…: danielle i am very sorry about your brother , i love your pictures of frankie, thank you very much for starting this site, my best friend in the untied state son has dmd i to have phycall changeless but that is not going to stop me from finding a cure to dmd. kimmy

At 10:38am on November 11, 2011, Jeferson Marques Machado said…: Hello Danielle, I have DMD and his brother 20 years and I really liked what I saw, especially in the photos. After all he seemed so happy as I am, because the important thing is not how it ends, but the way we conceived before he arrives. I would love to keep in touch with you. After a long time running away from that I do not want to hear, now I feel ready to face whatever comes ahead. Could you hand me your e-mail?
Thank you for your attention.

At 6:38am on October 28, 2011, Christine Davies said…: It's been a while and I was a wee bit stressed last time we met. how are you and thanks for starting this page for us here in the U.K.

Hoping you, Adam and your sister are well and enjoying life!

We are all well and Benjamin is loving his new school and i am almost on top of things again.

Hope to hear from you soon.

Christine x

At 12:45pm on April 15, 2009, Lorraine Davies said…: Hi Danielle, It's Alex's brother Ethan who is into wrestling, although Alex is a bit of a star spotter and has met alot of famous people.His favourite was Peter Mayhew(Chewbacca from Star Wars) and his most recent was Cherie Blair at our local hospice. Looked at your pictures of Frankie and it looks like you had so much fun , memories that you will keep forever. Lorraine x

At 11:20am on April 12, 2009, Ian Anthony Griffiths said…: I'm not up to much over Easter, I never really go anywhere, I like staying in my house. I've seen my niece and nephew, their cool kids, I bought them some chocolates!! Got my own stash too hehe. What are you up too over Easter?

At 9:23am on April 12, 2009, Ian Anthony Griffiths said…: oh I see, on some forums you reply on your wall, its confusing lol. I hope you get that piece of art very soon, it'll look fantastic :) Hope your well!

At 12:48pm on February 28, 2009, Cathie Bullis said…: Danielle,
What a wonderful life you and your sister gave your brother. The photos were inspiring. I am so sorry for your loss, but your memories will be with you for ever.

Cathie Bullis

At 11:37am on February 6, 2009, Toalson Family said…: Danielle:

I found you when I was looking for information about hospital beds and mattresses as my son is having a lot of difficulty sleeping. I have already requested information from the mattress company as you said Frankie did quite well with the mattress he used.

I am so sorry that Frankie passed away. I loved looking at all your pictures and it appears that he was able to enjoy a wonderful life. How wonderful of you and your sister to take such good care of Frankie. It brings tears to my eyes. Thanks for continuing to be involved in the PPMD community to help others of us who need advice on helping our sons deal with this disease.

At 3:31am on January 16, 2009, Debbie Freeman said…: Thanks danielle would love too. im so sorry for your loss, but as i read and see the best life you gave Frankie ! the laughter , smiles and love.

At 12:21pm on January 8, 2009, Tracy said…: You are such an inspiration! What a great life you gave Frankie (I watched your video)!!! I hope I can give my son things to smile about. My brother had DMD and died when he was 17. I was a terrible sister, very selfish. OH how I would do things differently......

At 5:11pm on January 7, 2009, Jill Keenan said…: Just read your post in Our Stories and thought it was such a beautiful story!! Thanks for sharing and for being such a great "parent" to your little brother. I am truly sorry to learn that he has passed on and wish you so much love and support as you try to carry on without him.
Jill

At 5:51pm on January 4, 2009, Clare Cartwright said…: Many thanks Danielle x

At 10:25pm on January 2, 2009, Ardy Nelson said…: Wow! AMAZING pics! I'm a 12 yr. old boy in MN. and my cousin has MD. I really like how you made sure Frankie had an enjoyable life in tough situations like his. I hope we can do that for my cousin. Thanks!

i'm writing this from my grandma's page
Elan Nelson

At 2:18pm on January 2, 2009, Sandra Fitzpatrick said…: Hi Danielle,

Thanks for the welcome, and what a brill idea to set up the group. I am sorry for your loss of Frankie, you obviously all loved each other very much, and it shines through in your photo's. Best wishes for the new year.

At 12:51pm on December 30, 2008, jessica and gary fluaitt said…: Thats great, Give kids The World is such a wonderful and special place. We didn't want to leave it was like living in a place completely suited for our boys.

At 9:49pm on December 29, 2008, jessica and gary fluaitt said…: I am sorry for you loss, that was a big job you and your sister took on you should both be very proud. If I can ask how old was frankie when he passed away?

At 9:48pm on December 29, 2008, MommaToo said…: OMG! What a beautiful boy! He was so lucky to have a sister like you!

At 5:27pm on December 29, 2008, Mary Sahagun said…: First of all, I want to say, i'm so sorry for your loss. It's so evident that Frankie enjoyed his life to it's fullest. His beautiful smile and laughing face tells the story so well. It looks like you did a wonderful job of making memories. Thanks for sharing a little of your brother with us.

Mary

At 4:07pm on December 29, 2008, Dina said…: Looks like you did a lot of things with your brother. I hope you are doing well. Take care

At 10:52am on December 29, 2008, Amanda Trosper said…: That's amazing that Frankie had sister like you to take care of him. He looked like he was an amazing and happy person.