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At 10:31am on September 28, 2017, sulthana shaik said…

I am so sorry for your loss. This is a  hard pill to swallow , 

I look up to your discussions as an inspiration, 

At 11:46am on September 20, 2017, Joshua's mom said…
Hi Bruce,
Joshua passed away in February of this year at the age of 13 from congestive heart failure.
The supplements he was on, we started one at a time, at the age of 3, to be sure there was no reaction to them. Before starting them, he practiced swallowing rice krispies because he hated the taste of chewing them! They helped keep him ambulatory till he was 12, he rode a bicycle, climbed the stairs and didn't feel restricted. Once his heart started to weaken at the age of 12, he was then in his wheelchair full time and we stopped the supplements because the medication stopped and changed too. If you do have further questions, please ask. I believe the regiment he was on is still on my page.

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