Keith Van Houten's Comments

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At 8:13am on December 26, 2008, Darcy Tumminello said…
Keith,
How is Kyle? He has Beckers correct? Have you noticed much change and did they decide to give steroids? My son
is doing well so far. He will be 7 in Feb. I think he got started on the meds at the right time. He is doing well in school. which makes it easier since we have to run to OT/PT a few times a week. Just wanted to check in from PA.

Darcy
Christians Mom
At 1:35am on November 25, 2008, Traci Rico said…
Hi Keith,

I am sorry we missed you last week. I was in a car accident the week before we left to see Dr. Wong. How did your trip go? We will be going back in April. How about you all?
At 11:10pm on October 1, 2008, Jennifer Shumsky said…
Hi Keith,
My husband and I actually met at U of M, we lived in Ann Arbor/Ypsi area until 5 years ago when we moved to Minnesota. We are both still Wolverines at heart, just stuck in gopherland. It is a home game, it's the U of M/MSU game, should be good. We considered driving home for it, but we will just be coming home from a trip to California on October 18th and it would just be to much traveling.
I find the amount of DMD/BMD families in Michigan to be amazing, my parents are in Kalamazoo and my in-laws are in Traverse City for half the year. We miss Michigan, but have found fantastic care here (very experienced PT that was actually the one that recognized DMD in Xavier) and a great school system so I don't see us moving back anytime soon.
Next time we make it home though to visit we should definately connect!
At 8:16am on September 24, 2008, Julie Garcia said…
Keith,

Thanks for keeping us informed on the bill. I am real busy at work and with some things at home so your posts help me to stay informed. I was able to call DC last week to get support from some offices. I believe the House and Senate will pass the bill. We just have to stay active in pushing.

Take care, Julie
At 10:49pm on September 18, 2008, Julie Garcia said…
Keith good job on advocacy...is that your Rep that signed on? Wow, you really followed all the way through on that one! Great job!!!!
At 8:29pm on September 15, 2008, Julie Garcia said…
Keith,

I have to run but my friend Adele will be attending meetings n DC tomorrow....Pelosi is one of the offices and I plan on e-mailing my brother in-laws letter tonight. She needs it by 11am DC time...her e-mail is:
jasona65@verizon.net
Thought you might want to write a letter w/your son's picture as a reminder of your conversation with her.

Take care,
Julie
At 12:43am on August 19, 2008, Julie Garcia said…
Keith,

California just got another sign on for the House! One of the southern California parents made a trip to see her Rep today and met in person. He told her he thought he had signed on and would do so as soon as they come back from recess!

Just had to share the good news!

I plan on following up with Pelosi and another House member to try push them for signing on.

Have you heard any more on Pelosi about her support?

Well, I have to run.

Take care,

Julie
At 10:00am on August 15, 2008, Susan Mahlock said…
HI Keith,
I am Sue Mahlock, and I work for PPMD at the Executive Office. I have been volunteering or working for them for most of the past 12 years since my son, Billy's diagnosis. We found out when he was about 11-12 that he had Becker and not Duchenne. He is doing very well and is turning 19 next week. He is going to be a sophomore in college and I am blessed to say he even marches in the band! I don't know how he does it as he never could ride a bike or play sports but we are very very grateful for how well he is doing......it is hard to find other Becker parents out there so feel free to phone or write any time.....513-424-0696(office)
Best to your family,
Sue
At 10:05pm on June 26, 2008, Penny Cleland said…
Hi Keith,
I think I went to the main page of PPMD and did a member search for Friar. Try it and you will find them!
Are you going to the conference in July?
Thanks,
Penny
At 10:17am on June 26, 2008, DeAnne Friar said…
Hey there. How's your summer going? Just to let you know I have been thinking ouf you with Tim Russer's death and all. I remember what a Meet the Press fan you are.
At 7:52pm on June 25, 2008, Jill Keenan said…
Thanks for keeping us updated on the cosponsors! Ya know we now just depend on you to update us=) jk!
At 9:41pm on June 24, 2008, Penny Cleland said…
Hi Keith.
Disregard last e-mail. I found the Friars on this site.
Thanks,
Penny
At 9:34pm on June 24, 2008, Penny Cleland said…
Hi Keith,
Do you have DeAnn Friar's e-mail address? My computer went down and I lost my addresses.
Thanks,
Penny Cleland (We met in DC)
rpcleo@chartermi.net

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