Hi Alison: I just wanted to introduce myself and show support for your organization. I recently saw your foundation logo, and it reminded me so much of my own two grandsons. My name is Terry Porcaro, I am a member of PPMD and the grandmother of two beautiful little boys also diagnosed with DMD. Cole, age 7 ½ and Jack age 6. My grandsons live in North Haledon, NJ with their mom and dad, Lisa and Joe Nilsson. If you friend me on facebook, you can see pictures of my two little guys. I’m listed on facebook as Theresa Bizzaro-Porcaro. With warm regards, Terry
I wish we lived closer, we would participate in your events. We also have two boys with DMD, they are 8 and 9. We live in Alberta, Canada. All the best in your fundraisers!
I am 17 years old and I have Duchenne Muscular Dystrophy. I live in Robesonia PA. I have been searching for a friend or someone to talk to with the same condition.
Hi Allison,
Thank you for hosting Darius this past Friday in Cicero. Mike really enjoyed meeting him! Kathy was glad to meet you and your husband.
Ed Mort
Alison,
I am so glad I got to meet you! But,I am upset that we never got to sit down and talk! I definately want to learn more about what ya'll are doing and try to get something going myself. When you have time (which I know is not often with work and kiddos!) I will give you my number or get yours so we can talk!
Alison,
I went to you website. It is awesome!!! Your boys are all sooo handsome! I would love to hear more about your non-profit. I work in non-profit now, but I have always wanted to start my own and now I have a very personal reason to. I talked to my accountant last year about setting up a 501 c 3, but I have put it off due to funding for the organization and me trying to figure out how I can generate a salary from it so I could devote myself to it full-time. I applaude ya'll for creating that organization for your boys!
Alison Willis's Comments
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how old are your boys and are they still walking or how are they over all?
Hi Allison,
Is your father going to the PPMD Annual Conference in Florida this year? Hope things are going as good as possible -- so good seeing you in February.
Gail McVicker
Hi Alison: I just wanted to introduce myself and show support for your organization. I recently saw your foundation logo, and it reminded me so much of my own two grandsons. My name is Terry Porcaro, I am a member of PPMD and the grandmother of two beautiful little boys also diagnosed with DMD. Cole, age 7 ½ and Jack age 6. My grandsons live in North Haledon, NJ with their mom and dad, Lisa and Joe Nilsson. If you friend me on facebook, you can see pictures of my two little guys. I’m listed on facebook as Theresa Bizzaro-Porcaro. With warm regards, Terry
I wish we lived closer, we would participate in your events. We also have two boys with DMD, they are 8 and 9. We live in Alberta, Canada. All the best in your fundraisers!
Jody
hi alison how are you i realy enjoy looking at your pictures of your boys very beautiful
i to try help darius weems. kimmy watters
Hi this is David Evans
I am 17 years old and I have Duchenne Muscular Dystrophy. I live in Robesonia PA. I have been searching for a friend or someone to talk to with the same condition.
Thank you for hosting Darius this past Friday in Cicero. Mike really enjoyed meeting him! Kathy was glad to meet you and your husband.
Ed Mort
I am so glad I got to meet you! But,I am upset that we never got to sit down and talk! I definately want to learn more about what ya'll are doing and try to get something going myself. When you have time (which I know is not often with work and kiddos!) I will give you my number or get yours so we can talk!
Rhi
All the best to you and your family!
Julie
StaffRyan Fischer said…
I went to you website. It is awesome!!! Your boys are all sooo handsome! I would love to hear more about your non-profit. I work in non-profit now, but I have always wanted to start my own and now I have a very personal reason to. I talked to my accountant last year about setting up a 501 c 3, but I have put it off due to funding for the organization and me trying to figure out how I can generate a salary from it so I could devote myself to it full-time. I applaude ya'll for creating that organization for your boys!
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