Hi Alison: I just wanted to introduce myself and show support for your organization. I recently saw your foundation logo, and it reminded me so much of my own two grandsons. My name is Terry Porcaro, I am a member of PPMD and the grandmother of two beautiful little boys also diagnosed with DMD. Cole, age 7 ½ and Jack age 6. My grandsons live in North Haledon, NJ with their mom and dad, Lisa and Joe Nilsson. If you friend me on facebook, you can see pictures of my two little guys. I’m listed on facebook as Theresa Bizzaro-Porcaro. With warm regards, Terry
I am so glad I got to meet you! But,I am upset that we never got to sit down and talk! I definately want to learn more about what ya'll are doing and try to get something going myself. When you have time (which I know is not often with work and kiddos!) I will give you my number or get yours so we can talk!
I went to you website. It is awesome!!! Your boys are all sooo handsome! I would love to hear more about your non-profit. I work in non-profit now, but I have always wanted to start my own and now I have a very personal reason to. I talked to my accountant last year about setting up a 501 c 3, but I have put it off due to funding for the organization and me trying to figure out how I can generate a salary from it so I could devote myself to it full-time. I applaude ya'll for creating that organization for your boys!