Margarita Yashchenko's Comments

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At 8:57am on January 9, 2018, suruchi yadav said…
Hi Margarita
my email Id is Suruchiyadav983@gmail.com....Please do reply.
At 1:00pm on January 7, 2018, suruchi yadav said…

Hi margareta

Thanks for your kind words ,in Israel do they hv any treatment for our kids please let me know,,,bcz my son is autistic too ,he has no sense for himself ,,,I am scared with this situation..Please help me .

At 12:52pm on January 4, 2018, Carol Keskeny said…

I have not received your email yet.  I will continue to look for it and will give it to you again.  ckeskeny@gmail.com   I hope you will write me again.  Thank you.  

At 11:02pm on December 10, 2017, Jessica Stevens said…

I have 2 friends that live by me from Ukraine. I am in Alberta, Canada. Her parents are going back home at the end of the month. Please email me jessicalynstevens@gmail.com anytime. I will ask the girls where they are from. They go home once every 4 years. 

Jessoca 

At 1:54pm on December 10, 2017, Carol Keskeny said…

Dear Margarita,

I am so glad you wrote.  This is a very good community, you will find a lot of support here.  My son is now 31 years so and is doing ok.  Have you ever research France for their research?  I have heard they are doing some amazing things I have heard.  I'm so sad to hear you have to travel so far to get any help.  We are lucky in the US to have so many resources so close by.  One of son's nurses is  from the Ukraine and has been with us for several years now..  We love her very much.  My son is not on any special medicines at this time.   He is on a ventilator to help him breath.  My personal email is ckeskeny@gmail.com.  Best wishes for you and your family.  Please email at any time and I will write you back.  Much love, Carol .  

At 9:37pm on September 16, 2017, Jay Griffin said…
Jaygriffin@ctc.net
At 9:36pm on September 16, 2017, Jay Griffin said…
Email me atjaygriffin@ctc.net
At 10:00am on September 7, 2017, Jay Griffin said…
Are on Facebook messenger
At 10:00am on September 7, 2017, Jay Griffin said…
He is doing well
At 6:22am on January 22, 2017, Jay Griffin said…
Hi. Our son is 7 and he has Duchenne. We are in the United STATES. We can skype a little early here. How is he doing?
At 9:50am on March 30, 2016,
Staff
Abby Bronson
said…

Dear Margarita: Thanks so much for writing about your son Yashchenko.  It sounds like you are doing the right thing by going to Israel for medical care, although that must be awfully burdensome. Is your son on steroids? While that is a medical decision the trust must be made by your physician it is considered to be the standard of care. I wish I could say that American Doctors had a cure, but we don't. We (and the EU too) are testing many therapeutics but nothing has been approved so far. The PPMD website lists of all the compounds the are being tested on our website and try to keep it as up to date as possible, so that is a good resource for you.  You should join and you can keep updated on anything new.  TREAT-NMD http://www.treat-nmd.eu is also a great resource, more EU focused and may have some support that is closer for you. Our annual Connect Conference, http://community.parentprojectmd.org/events/2016-annual-connect-conference is the largest  family and patient conference and will be streamed online. Watch the website for more details.  Also, there are many very active Facebook groups that focus on DMD and could be a good resource for you. Many families ask questions and much good information is exchanged. Please let me know if you have any other specific questions and please stay in touch! - Best,

Abby

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