Christina's Comments

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At 12:55am on March 30, 2011, David said…

My son's name is Joe too...he is 12 1/2 now, in 6th grade. Does your Joe attend the MDA camp? If so they probably have met, we've been going for years.

 

-David

At 9:53am on January 19, 2010, curtis renard said…
Hi Christina,

Thanks for note about Ryan. He is a great guy and he is doing very well. I'm not sure if you have seen the short piece that our local news station aired on him, so here is the link: http://www.kake.com/home/headlines/69538137.html

We are very hopeful that an orgainzaiton such as MDA or PPMD will sponsor a trial using the same techniques using adult stem cells that Ryan went through. Please let me know if you would like more information about Ryan's treatments and I will pass them along....Curt
At 8:32pm on December 7, 2009, Misty VanderWeele said…
Thank you and your welcome...13 years ago I didn't have the internet now that I do, I feel for the ones who came before us. Did you grab the Duchenne Parent Survival Kit yet?
At 8:29pm on December 7, 2009, Misty VanderWeele said…
He is a "boy" he just has to do it differently for however long he has with us♥ Over the years I have had times I was very active then times no so much...not only is Duchenne Progressive so is our grief as parents. If I need time I take it, when I want to reach out I do. The main thing is yes I have bad days like today, crying and wondering how I can love the you know what even more out of my son. He 18 on the 22nd every second, minute, day, month or year is a blessing, I'll take it!
At 5:14am on December 4, 2009, Julie Garcia said…
Hey there...I don't get on here much any more...Yes, Cathie is an amazing person!
At 9:56pm on December 3, 2009, Cathie Bullis said…
Hello Chrstina,
I would be happy to meet with you sometime. We will be out of town from Dec 18th -Jan 3rd, but will be around all through Jan.

Would you like to meet after the holidays?

Cathie
At 8:27pm on December 3, 2009, Misty VanderWeele said…
HI Christina...saw that you are online...How are you??
At 3:35pm on March 18, 2009, Julie Garcia said…
Hi Christina, just got word the meeting is postponed until May. Hopefully, we will hear details on the May one soon.

Take care, Julie

We can try to get together before then
At 11:45pm on March 12, 2009, Julie Garcia said…
Hey there, are you coming on the 28th?
At 1:40am on February 22, 2009, Julie Garcia said…
Hi there! It gets hectic...I would love to get together too.
At 1:49pm on December 10, 2008, Julie Garcia said…
Oh, I was by myself and did not have Nick with me. I had my dirty green van with the PPMD magnet on the back. Your husband had just unloaded Joseph and was about ready to take him into the building when I was getting in my car.
At 1:48pm on December 10, 2008, Julie Garcia said…
Christina,

I almost said something to your husband but I was just stopping by to pick up a medical form for SMUD and Paratransit. I recognised your son and I think he might have recognized me.

I was going to stop your husband, introduce myself but knowing me I would talk longer then I had time. Nick's doctor is in the same building.

So, Joseph sees Dr. Parrish? I think all dmd see Dr. Parrish.

Take care,

Julie
At 9:42pm on December 9, 2008, Julie Garcia said…
Christina,

Did you husband take Joseph to the doctors on Monday in the morning at the Glass Rock building?

Julie
At 10:41am on November 23, 2008, Julie Garcia said…
Christina,

I have been thinking about you and do want to talk. It has been hectic and I will call some time soon.

I hope Joseph had a wonderful party! It sounded like it was going to be awesome!

Happy holidays!

Julie
At 12:59am on November 18, 2008, Kulwant Pannu said…
Hi Christina,
Just wanted to say thank you for your advice for our MDA appt. Sorry that we were not able to meet up on that day I know Julie was going to be there as well but by the end of the appt Neel was just ready to go home. Maybe we can all get together sometime soon and get to know each other.
Kulwant
At 10:48am on November 15, 2008, Julie Garcia said…
Christina,

It is such a small world. It was really nice to meet your brother. I always wondered after the brief meeting what he thought about PPMD. I am not a speaker and just really want to do well for PPMD and help educate others and gain support. PPMD is truly a remakable organization. There are other good foundations but PPMD is the leader for dmd that is the largest grass roots organization that represents our families.

I will try to call you soon. I know you have a birthday party this weekend. Please tell Joseph happy birthday from me. He is a beautiful child.

This week has been hectic and the weekend looks like it wiil be as well. I will call because I would like to share information and get know you better.

Take care,

Julie
At 9:24pm on November 13, 2008, Julie Garcia said…
Christina, I enjoyed our visit and look forward to many more.

Hey, did I met your brother in Auburn during PG&E's Campaign?
At 10:23pm on November 12, 2008, Julie Garcia said…
Christina,

It was really great to meet you and Joseph. Yes, we will have to talk soon and get together real soon as well. Sorry about Nick in the background. He is always anxious to go home after his night course and does not like for me to talk on the phone and drive.

Let me know if your brother is the same person I met about 2 years ago in Auburn during PG&E's Campaign for the Community. I am doing what I can to get support from PG&E for PPMD. I am not a speaker but I do go out and talk during our campaign to get money for PPMD. This year I was put in for the Meilke award for my PPMD volunteer work. If you volunteer 40 hours or more per year you can be put up for nomination. I did not get first place, which is $5,000 to the charity. However, I did get $1,000. There is always another year.

Talk soon.....

Julie
At 1:58pm on November 3, 2008, Julie Garcia said…
Christina,

You want to make sure you have all options available and Shriners does give you more options. Nick goes once a year. He has an appointment in November.
I am still learning as I go and I have a lot to learn. We have Blue Shield, UC Davis as primary and Kaiser as secondary (mine). Nick sees Dr. Wong in Cincinatti as well.
I am looking forward to talking in person.
At 6:49pm on November 1, 2008, Julie Garcia said…
Christina,

I will add you cell phone to my phone shortly. I appreciate having it. I did not have your e-mail or cell phone number before now so I thank you. I am learning as I go as well and want to share whatever information I can.

Do you take your son to Shriners?

Julie

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