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We have so much momentum. Let’s seize this moment.


First of all, let me say THANK YOU! Your gift to PPMD on #GivingTuesday helped us surpass our goal, and we could not be more grateful. It is a wonderful way to kick off our holiday season—and we wanted to make sure you were among the first to know about our year-end research project.

PPMD has a long history of funding innovative therapies that hope to stop the progression of Duchenne. Finally getting a Duchenne drug approved was an incredible victory. And with the recent breakthroughs in CRISPR/Cas9 gene-editing technology, we have another exciting moment in our community—the opportunity to fund potentially game-changing research.

That is why PPMD is raising $250,000 to further the exploration of CRISPR/Cas9 technology in Duchenne—and that is why the Killian family is matching every gift, dollar for dollar, until we hit that goal. Donate today and your gift will be doubled!


With the potential to target and modify DNA with incredible accuracy, CRISPR/Cas9 gene-therapy technology shows real promise to help every family with Duchenne. This is an incredible time in our community, and PPMD is determined to keep our momentum going.

I don’t need to tell you what a milestone the recent approval in exon skipping is. It’s the win we all needed—parents, family members, friends, fighters—to give us hope against a disease defined by a series of losses. This shows us what we’re capable of when we don’t give up, when we come together as a community.

We have an opportunity to harness the energy in our community right now to power more victories. Because of your donation, PPMD marked #GivingTuesday by surpassing our goal of $20,000 to grow our ongoing efforts to support research into new clinical therapies—but we can’t stop there!

Help us find out just how much CRISPR/Cas9 can do to end Duchenne. Let’s seize this moment for every person living with Duchenne—and raise $250,000 by 12/31. Donate today and the Killian family will match your gift! 


Thank you for supporting PPMD this holiday season. Thank you for helping us seize this moment.

Pat Furlong


P.S. Raising $250,000 by 12/31 is an ambitious goal. But one thing this community always seems up for is a challenge, as we proved earlier this week. Help us reach our goal and have your donation matched by my friends in Texas, the Killians!



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Comment by pam moodaly on December 7, 2016 at 3:21pm

Well achieved Pat and the team!!!

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