I don't know about you but after 12 years of dealing with Duchenne I have learned to become quite an actress. Early on I realized that no matter what we do we are on the outside of the "mom" world. You start to realize either you need to get on the bandwagon and act like all the inane problems mostly self created everyone have are interesting or choose to sit alone on the sidelines with your real problems that you did not create and wallow in self pity. So, I took up my acting career in order for my boys to have friends, me to have "friends". So lately I have been commiserating with friends who are terrified that their boys just got their driver's licenses, what lacrosse uniforms should look like, how disappointing it is that their youngest may not be the athlete his brothers are..on and on and on..But this last week has been so excruciating that I am about to come off the stage and out of my character and scream at the top of my lungs. One friend I met last week for happy hour told me the unfortunate tale of her sons both in rehab for heroin..the shooting up kind..they are 19 and 16. She seriously started to compare that to me dealing with my 2 teenagers with DMD..What?...really? Then tonight a friend but not really a friend as I feel like I acted my way into this friendship out of the fact she is friends with other friends posted something so offensive on facebook I lost it.(sort of) She is the kind who posts every little detail about her life and constant travel blah blah blah..so she and her family are stuck in the airport waiting for a flight and she posts a picture of her 15 year old daughter in an airport wheelchair with the caption, "B...entertaining herself while we wait"..so when the actress kicks in I usually ignore it but not this time..I post back.."sorry..really not funny"..she says "well not trying to be funny she was just wasting time and this trip is not for something fun".. in my mind I say so how is entertaining yourself by playing with a wheelchair have anything to do with that?..I didn't post another thing..but had so many more really horrible retorts but stopped as how does that help our cause? It doesn't..It just ends up with me looking like a crazy person. must get back to being Meryl Streep once again..where's the wine?..