Sometimes it feels as though nothing is wrong, at all. And that's what's the most baffling - my son is racing around, playing with friends, running like the clappers, full of energy.. you'd just never think he had a muscle disorder going on in the background. And then he flops on the couch and looks absolutely knackered, and there it is - the little reminders. I guess it'll be this way for a while. But who knows? 2014 really requires a new mindset: one day at a time. Easy to write it here.. hoping I can really adjust my thinking!

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