This summer, PPMD will host a pre-conference the day before the , addressing the issue of transitioning individuals living with Duchenne from pediatrics, through adolescence and into adulthood. We realize that this is a very complex process that will require a program that should begin as early as age 12, and will extend well into adulthood. The purpose of the pre-conference is to provide a first step that will bring together parents, patients, providers, and policy makers to begin to develop a program and tools that will help make transition a smoother process.
Transition from childhood to adulthood is a complex issue for every adolescent and young adult living with a chronic illness. Federal policies are not always supportive of the process of transitioning to independence in either the medical or social arenas.
e-PolicyWorks is a government online initiative, launched by the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP). The purpose of this organization is to offer a web-based approach to policymaking that engages citizens and stakeholders in new and innovative ways.
Beginning May 13, 2013 at 9:00am EST, an online discussion will begin regarding transitioning youth from school to work. Four agencies will take part in the conversation: the Department of Labor, Education, Health and Human Services, and Social Security. Everyone interested in supporting the aspirations of youth and young adults with disabilities to live, work, and thrive in their communities is invited to register and participate in this online discussion. The purpose of this discussion is to gather information regarding what legislative and regulatory changes need to happen in order for youth and young adults with disabilities to effectively be educated and employed, and obtain assistive services and social security services. Ideas generated from this discussion could be used to affect federal policies.
This is a rare opportunity to discuss these important issues with four agencies at one time. I would encourage everyone to register and participate in this very important discussion. This is an important issue for everyone in our community.
Learn more below:
Join the Conversation for Change
Shape federal agency strategies for helping young people with disabilities successfully transition from school to work. Go to http://fptepolicyworks.ideascale.com/ to register.
Please note: This dialogue will begin at 9:00 am ET on Monday, May 13th, 2013. You will not be able to submit an idea or participate in this community before May 13th.
The U.S. Departments of Labor, Education, Health and Human Services and the Social Security Administration are hosting this free, public online dialogue to examine the impact of existing federal regulations and legislation on the transition from school to work of youth with disabilities. Policymakers, service providers, advocates, youth with disabilities and others are invited to join the effort to improve transition outcomes for youth with disabilities by providing their input to the following:
What legislative and regulatory changes need to happen to effectively implement employment, education, health and human and social security services for youth and young adults with disabilities under public law?
Following are a few areas to consider when examining barriers to implementing services under public law and regulations:
Why is this happening?
The four host agencies want to ensure that all youth benefit from collective federal resources to achieve economic empowerment and maximize independence. Your input to this dialogue is extremely important because studies have shown that, compared to their peers without disabilities, students with disabilities are less likely to receive a regular high school diploma; twice as likely to drop out of school; and half as likely to enroll in and complete postsecondary education programs. Up to two years after leaving high school, about 4 in 10 youth with disabilities are employed, compared to 6 in 10 same-age, out-of-school youth in the general population (National Center for Education Statistics, 2000; National Longitudinal Transition Study-2 [NLTS-2], 2005).
Your input can help these agencies identify federal and regulatory barriers that prevent youth with disabilities from achieving successful transition outcomes. It will also facilitate their working together strategically on an interagency basis to improve the alignment of policies, programs and practices that support the successful transition from school to work of youth with disabilities.
Who Should Participate?
Anyone with a personal or professional stake in supporting the aspirations of youth and young adults with disabilities to live, work and thrive in their communities is invited to register and participate.
Let’s Get Started
From May 13 to May 27, 2013, you can submit ideas, vote on existing ideas, or add comments to this online dialogue. But first you need to register at: http://fptepolicyworks.ideascale.com/. Then, to post an idea, please click the "Submit New Idea" link below. You will then be prompted to add a title and choose a category for the new idea. To vote on an idea, simply click the up or down thumb graphic located to the right of each idea title. To submit a comment, select the link to "Add Your Comment" located below the idea description. If you experience any technical or accessibility issues, please email the ePolicyWorks team at ePolicyWorks@dol.gov for assistance.