If your summer was quiet and your Google alerts focused on fundraising rather than breaking news, hold on. Its almost September and while September is the third quarter of the year, in some ways it is a beginning, when life ramps up, school starts, Congress returns, and the world of muscle gathers in Geneva Switzerland for the World Muscle Society (WMS) meeting – September 9-12, 2009.

Thankfully Duchenne muscular dystrophy and/or muscle is the topic of many meetings throughout the year. The WMS meeting is one of the major meetings and the brainchild of Victor Dubowitz. Dr. Dubowitz spent a great deal of his career treating patients at Hammersmith Hospital. He thought everyone in the world interested in muscle should meet once each year. I think we all might agree, that the world should gather and concentrate on Duchenne. Dr. Dubowitz’s idea was a bit more broad perhaps, but the idea solid and with that in mind, he started the World Muscle Society.

The meeting provides a multidisciplinary scientific forum to advance and disseminate knowledge in the neuromuscular field for the benefit of patients. Exactly what is needed! BENEFIT for patients.

This will be the 14th year for the WMS meeting. Each year, three topics are identified and this year they are:
Topic 1 – new methods for assessing disease progression in neuromuscular disorders
Topic 2 – The extracellular matrix in normal and diseased muscle
Topic 3 – Advances in treatment of neuromuscular disorders

Clinicians will be discussing interdisciplinary care, outcome measures, and clinical trials – promising next steps within reach. Companies will be reporting on progress to date and plans for the future. Bench scientists will report on new findings. “Google Alerts” will be fast and furious as we expect to hear from bench scientists and from industry such as Prosensa, AVI, BioMarin, PTC, and a number of others who will describe clinical trial results, progress, plans, and next steps.

Our greatest hope is that all of us together will end Duchenne.

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Comment by Ofelia Marin on September 14, 2009 at 5:34pm
Hello Pat,

Have you attended this meeting? Would you be able to let us know about the data presented by Prosensa, AVI and Acceleron? I am most interested in Prosensa's data, specifically the % dystrophin obtained at the highest dose level (10 mg/kg).


Comment by Pat Furlong on August 21, 2009 at 7:56am
I will look forward to meeting you JP.
Comment by JUAN PEDRO ARBULU on August 21, 2009 at 3:06am
Thanks for the post Pat...it feels good to open your blog and always have news!!
JP....on the 19th september arriving at CCH.
Comment by Jacobs Mommom on August 19, 2009 at 2:06pm
"Our greatest hope is that all of us together will end Duchenne." Well put:)

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