PPMD is excited to announce next year’s lineup of areas we will visit as part of our End Duchenne Tour!
Combining each of the pillars that make up PPMD’s mission, the End Duchenne Tour brings updates on research, advocacy, and care to cities across the country, featuring a roster of leading experts in the Duchenne space.
You have told us what topics are the most important to you and we have listened, using your feedback to inform our robust agenda at each tour stop. This is also an opportunity to connect with local families, learn more about PPMD’s patient registry (DuchenneConnect), and genetic testing and counseling program (Decode Duchenne) and, when possible, explore your area Certified Duchenne Care Center.
As always, each meeting is free with breakfast and lunch provided. Kids are also welcome to attend and participate in PPMD’s Kids Track.
Upcoming 2018 visits*:
New Year, New Name!
PPMD will continue to travel the country – as we enter our 24th year! – in an effort to reach every single family facing a Duchenne diagnosis. And we believe “The End Duchenne Tour” reflects the richness of the programming we are bringing you.
Every element of each tour stop plays a role in the battle to end Duchenne – whether we are discussing the latest research updates, care improvements, advocacy actions, or ways you and your family can get involved. And each presenter on our agenda is fighting with us on the frontlines, from researchers and scientist, to care providers and physicians, to industry and partner advocacy organizations.
This is your opportunity to interact with vetted leaders in Duchenne and to connect with neighbors on the same journey as you.
Stay Tuned for More Details and Join Us on the 2018 End Duchenne Tour!
* Specific dates and locations will be added over the coming weeks.