Dear Pat,
How sweet to thank us. I am so thankful that we have you and PPMD organization. So much progress has been made. I am so amazed that now we have the NIH looking at muscle diseases and was appalled that they had not done so until PPMD came along. We have met so many other families dealing with this disease and I love sharing with them and hearing their stories about their sons. What a neat group of people!!!! Keep up the good work. And I am so thankful for our daughter and her husband who thought to include our Ben in their wedding. They are really cool young people and we are so fortunate to have them. They are such strong advocates for our Duchenne family. And I am so thankful to have a husband who is really Ben's main caregiver so that I can still work a full time job. Thank you so much for this opportunity for me to voice what I am truly thankful for.
Happy holidays to you, your family and all of the staff at PPMD!
Joyce Carpenter
Ben's Mom

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