anyone have any experiences using steroids with their son???  My son is 5 and they r thinking it might b time...not sure how I feel??  help!!

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Comment by Andrew Kerr on August 21, 2013 at 10:46am

My reply seemed to have disappeared... I'll try and get the same stuff in here...

Hayden was peaking physically at about 4.5 years old when we started him on Deflazacort.  After starting him, we did notice an increase in strength, and this was confirmed by looking at video of him doing some balancing and other things with the physical therapist taken about a year apart.  You could clearly see he had better balance and had an easier time going up stairs.

As for side effects, with both kids being on steroids, we don't really know what "normal" is.  I read someone describe steroids as often turning up the volume so to speak, on emotions.  That's how I'd describe Hayden at times.  He seems to get overly excited or upset at things from time to time.  This doesn't happen all the time, but I do think he over-reacts to things at times.

And please don't apologize for asking questions here.  This site is great place to share our experiences and give our kids the best life we can.  I'm always happy to share anything I can with other parents.

Comment by Laurie on August 20, 2013 at 12:39pm

Thanks so much!!!  I appreciate your time!!!

Comment by Laurie on August 20, 2013 at 12:17pm
Thanks.... how has their progress been on them....and side effects??? sorry to ask
Comment by Andrew Kerr on July 22, 2013 at 3:21pm

Both our sons started at age 4.  Hayden is now 7, and Cameron is 4, and has been on steroids for several months.

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