Short online questionnaire on Duchenne and epilepsy.

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News:  short online questionnaire on Duchenne and epilepsy.

 

 

Dear parents, boys and young men,  

We want to ask your attention for a scientific research project on Duchenne muscular dystrophy and epilepsy. This research project can produce relevant and new knowledge that may be important in clinical care. We want to know how often epilepsy occurs in boys and men with Duchenne. Therefore it is important that as much as possible parents or young men with Duchenne muscular dystrophy complete this online questionnaire.

Please complete the questionnaire even if you or your son have never experienced epilepsy. Completing the questionnaire can be done easily and in a few minutes by using the following link  https://www.kempenhaeghe.nl/duchenne/ 

With your answers you help us in our research on answering questions about Duchenne and  epilepsy.

Finally: the questionnaire has to be completed by only one person: in other words only a parent or a young men themselves should complete the questionnaire.

We keep you informed about the results of this project. 

Thank you very much for your cooperation!  

 

Ruben & Jos Hendriksen (Maastricht University Medical Centre)

Elizabeth Vroom (Duchenne Parent Project and United Parent Project MD)

 

 

Amsterdam, December 17th, 2014

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