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Register for PPMD's 2016 Advocacy Conference in Washington, DC (February 21-23, 2016)

Come and advocate for Duchenne directly with members of Congress.

PPMD's Annual Advocacy Conference, held in the first quarter of each year, is the only officially organized gathering on Capitol Hill for the Duchenne community. Families affected by Duchenne will storm Capitol Hill on February 22nd and 23rd to meet with members of Congress and their staffers asking them to focus federal resources on Duchenne.  

Our Annual Advocacy Conference continues to yield results for the Duchenne community. Over the last 15 years our Advocacy has resulted in:

  • A full and promising Duchenne drug development pipeline with nearly 25 potential therapies in clinical testing and several others in earlier stages of development. 
  • Over $300 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care being established for all those diagnosed with Duchenne, which thanks to you is in process of being updated to reflect the current standards.

With the passage of the MD-CARE Act Amendments of 2014 it is now more important than ever to raise our voices on Capitol Hill.

We hope you can join us in DC!

Basic Agenda

  • Sunday, February 21nd, 3pm-7:30pm - Advocate training
  • Monday, February 22nd, 9am-5pm -  Hill meetings 
  • Tuesday, February 23rd, 9am-5pm - Hill meetings

First Time Advocating?

Don't be intimidated. Before you meet with your members of Congress, PPMD will provide you with extensive training and support, so you go into your meetings feeling empowered and prepared.

Learn More & Register Today


Learn more about the Advocacy Conference, including registration details and hotel information. 

(Note: There is NO registration fee for this conference)

 

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