One year ago today (Jan 9,2009) was the day that my world seemed to stop, I was punched in the stomach and my head was spinning. I was being told that there was no HOPE for my sweet baby boy! Diagnosis Day (a day I will never forget).

Over the last year, I've learned 2 things.

One thing I've learned is when someone, a doctor, someone who is supposed to help people, says to you, "I'm sorry there is nothing we can do, all you can do is take him home and love him." DON'T TAKE THAT FOR AN ANSWER!!! If we'd listened to him, we wouldn't have become the advocates for Wyatt that we are today. We wouldn't have been to Dr. Wong twice since then, Wyatt's Daddy and Grandpa wouldn't have run in the Seattle Rock and Roll 1/2 marathon raising over $1800 for PPMD, and mostly we wouldn't have learned that there truly are things we can do. He is on extra vitamins, he gets daily stretches, and so much more. "There's nothing we can do!", That's so so wrong.

The second thing I've learned is that I'm not the only one. (I wish others weren't going through this too, but in a weird way it's a comfort.) I've met some wonderful people on this site who have taken me through some very dark times. I'm honored to call you my friends. This year has been very difficult for our family, but I truly am blessed to have PPMD and my FRIENDS. Thank you for all of your support.

We have so much to be thankful for and so much love to give Wyatt. He's truly the sunshine in our house. There isn't a day that goes by that we don't love him more and more. He's the positive force in this negative world. We are enjoying every day with him and fighting to turn those days into a lifetime.

I have now learned that this date, January 9th, isn't a date I want to rmember. It's not a date that should be some sort of memorial and grieve his diagnosis. We are moving past that, the real celebration is on Feb 22nd, the day God gave me the greatest gift of all, Wyatt. I am a better person because of our sweet baby and I will not let him down, that' what Jan 9th is, the day we began the fight for Wyatt's life.

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Comment by Wyatt's Mommy, Melissa on January 14, 2010 at 4:12pm
Thank you veronica. It truly means a lot to me that you enjoyed it.

How is max doing? Wyatt only started walking a few months ago, how does Max do with walking, getting off the floor, etc? Is he keeping up with milestones. Max is one of the kids on this site who is closest to Wyatt's age (he's 22 months now), so I'm just curious. Wyatt is about 24 pounds, give or take, so he's the size of an 16 - 18 month old, but he's come a long way.

I am in love with his Max's curly hair, it's so so cute. His smile lights up the room (or in my case, the screen). What a gorgous kiddo

How were the holidays? Great for us, our boys are at the age, where they love the lights, decorations and all of that. What a fun xmas morning we had. I bet Max loved it too.

How is your daughter doing?

Take care and I hope we can talk soon.
Comment by Veronica E. on January 14, 2010 at 3:36pm
I love your last paragraph! There is so much to be hopeful for for our little sunshines!
Comment by Wyatt's Mommy, Melissa on January 9, 2010 at 9:11pm
Ann,
Thank you! We actually did hear the NO HOPE from a Seattle Dr. Granted, he was a genetics Dr. not an MD doctor, so he may not have known about new treatments and such. I do have to say the counselor in Seattle Jessi was wonderfully compassionate and extremely understanding. I think the Seattle Dr. found the answer to our "mystery (that's what they kept calling it) " and not that he doesn't care, because I truly believe they care about Wyatt, but he needed to move on to the next patient. I'm not angry with Seattle or feel they treated us poorly, quite the opposite actually.

I am so encouraged that your son is doing so well. I love to hear stories about boys (men) who are living their lives despite (like you said) an unwanted jouney. I'm sure on this road, you will be a great asset to have. Thanks for coming into our lives.

Melissa
Comment by Wyatt's Mommy, Melissa on January 9, 2010 at 9:04pm
Janine, Thank you so much.
Comment by Janine on January 9, 2010 at 4:46pm
This is something I read today. "Growing through suffering requires shifting our outlook from one in which we feel alone to one in which our experiences, even difficult ones, are related to something larger." Growing through suffering requires hope...and hope often smiles.
Comment by Ann Avery on January 9, 2010 at 4:39pm
Melissa--I HOPE you didn't hear the "no hope" news from Children's in Seattle?! We were told our son Roy might live to early 20's there, but then they did offer hope and treatments. It may encourage you that my son is 29 and is a contractor at Microsoft as a software development engineer in test. He is on his 100 days off right now, but expects to get his 3rd full-time contract after that. So there Mr. Dr. No Hope! Let me know if you need any encouragement or advice as you go thru this unwanted journey. Living in Bellevue, Ann

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