One year ago today (Jan 9,2009) was the day that my world seemed to stop, I was punched in the stomach and my head was spinning. I was being told that there was no HOPE for my sweet baby boy! Diagnosis Day (a day I will never forget).
Over the last year, I've learned 2 things.
One thing I've learned is when someone, a doctor, someone who is supposed to help people, says to you, "I'm sorry there is nothing we can do, all you can do is take him home and love him." DON'T TAKE THAT FOR AN ANSWER!!! If we'd listened to him, we wouldn't have become the advocates for Wyatt that we are today. We wouldn't have been to Dr. Wong twice since then, Wyatt's Daddy and Grandpa wouldn't have run in the Seattle Rock and Roll 1/2 marathon raising over $1800 for PPMD, and mostly we wouldn't have learned that there truly are things we can do. He is on extra vitamins, he gets daily stretches, and so much more. "There's nothing we can do!", That's so so wrong.
The second thing I've learned is that I'm not the only one. (I wish others weren't going through this too, but in a weird way it's a comfort.) I've met some wonderful people on this site who have taken me through some very dark times. I'm honored to call you my friends. This year has been very difficult for our family, but I truly am blessed to have PPMD and my FRIENDS. Thank you for all of your support.
We have so much to be thankful for and so much love to give Wyatt. He's truly the sunshine in our house. There isn't a day that goes by that we don't love him more and more. He's the positive force in this negative world. We are enjoying every day with him and fighting to turn those days into a lifetime.
I have now learned that this date, January 9th, isn't a date I want to rmember. It's not a date that should be some sort of memorial and grieve his diagnosis. We are moving past that, the real celebration is on Feb 22nd, the day God gave me the greatest gift of all, Wyatt. I am a better person because of our sweet baby and I will not let him down, that' what Jan 9th is, the day we began the fight for Wyatt's life.