Earlier this month, PPMD and other advocacy organizations joined 180 U.S. Representatives and 54 U.S. Senators to request the removal of language included in the Senate version of the National Defense Authorization Act (NDAA) that would have a detrimental impact on research at the Congressionally-Directed Medical Research Program (CDMRP) at the U.S. Department of Defense (DoD).
Following months of active collaboration among advocacy groups including PPMD, Senator Durbin (D-IL) sent the following note of gratitude to all within our coalition and we wanted to pass it along to each of you who helped to advocate to ensure that our Duchenne funding within the Department of Defense through the Congressional Directed Medical Research Program (CDMRP) remained intact:
“THANK YOU all for your work on this. I know this issue has consumed a ton of time and attention and resources, but it was worth it to have this outcome. We wouldn’t have been successful without all of you, as well as the thousands of grassroots folks standing and fighting right behind you.”
Read the letter submitted by PPMD and other advocacy organizations.