Are you willing to be interviewed about your experience with clinical trials?
PPMD is conducting a study to better understand how the Duchenne and Becker community think and feel about clinical trials and potential new therapies.
Our goal is to find new interventions to improve family wellbeing when considering or participating in clinical trials.
We are recruiting PARENTS and INDIVIDUALS WITH DBMD (age 12 and up) to be interviewed. We are especially interested in hearing from parents whose child was involved with the AVI, GSK, or Acceleron studies! Because our focus is on participation in clinical trials, we are only interviewing those people who have been involved with clinical trials within the past 3 years.
Please contact me at Hadar@parentprojectmd.org or call me at 512-516-4910 if you are interested in being interviewed or would like more information!
*Note: If you are interested in the study but are not eligible, we will be including a much broader group of people in the next phase of the study. Stay tuned for updates!