PPMD's 2015 Connect Conference Resources & Recordings - Part 1 (Thursday)

The first batch of presentations from PPMD’s 21st Annual Connect Conference in Washington, D.C. are available for download. If you were unable to attend this year’s conference or if you want to replay a presentation that you found particularly useful, we will be sharing all of the presentations over the next couple of weeks. To start, check out:

Session 1: We See Strength in Knowledge

Session Chair: Pat Furlong

  • We See Strength in Knowledge
    Speakers: Pat Furlong
    Download PDF




  • Why Comprehensive Care Matters: Understanding the Certified Duchenne Care Center Program
    Speakers: Kathi Kinnett
    Download PDF




  • Being Prepared: The DuchenneConnect Registry and Its Uses
    Speakers: Ann Martin
    Download PDF




  • Navigating School: An Ongoing Adventure
    Speakers: Annie Kennedy
    Download PDF




  • Keeping Your Family Intact: Surviving the Diagnosis
    During this panel discussion moderated by Mary-Lou Weisman, author of “Intensive Care: A Family Love Story,” hear first-hand accounts & perspectives from different family members when it comes to “making it work.”
    Moderator: Mary-Lou Weisman
    Panelists: Ben Dupree, Jill Castle, Gretchen Egner, Brian Egner, Rachel Poysky

Session 2: We See Strength in Research

Session Chair: John Porter, PhD

Session 3: We See Strength in Raising Our Voices

Session Chair: Ryan Fischer

Additional Conference Resources

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