Our Duchenne community’s life-saving research efforts are funded through a number of public and private sources. Beginning in FY 2011, the federal funding to Duchenne began to include the Congressionally Directed Medical Research Program (CDMRP) through the Department of Defense. Between FY 2011 and FY 2016, funding to Duchenne research was $20 million with an additional $3.2 million appropriated in FY 2017. More information about the CDMRP, including research efforts that have received funding in the past or have been recommended for funding currently can be found here. This Duchenne CDMRP program was initially established through the efforts of the Foundation to Eradicate Duchenne (FED) and PPMD works closely with FED each year to ensure the continuation and funding of our Duchenne program.
Two weeks ago, an amendment to the National Defense Authorization Act for FY17 was introduced that threatened the CDMRP – essentially prohibiting any defense research spending that doesn't directly benefit/protect the Armed Forces. A coalition of organizations quickly banned together to oppose the amendment and worked with congressional champions to protect this vital federal funding source. PPMD and other disease advocacy groups worked expeditiously to support Senator Dick Durbin (D-IL) in introducing an amendment that would protect our valuable federal funding resource, and we quickly worked to garner the support of Senate champions who would also vote in favor of the amendment to continue to fund vital, life-saving research through the DOD.
We were successful!
The final vote was 66 Yeas, 32 Neas and 2 abstentions.
Learn how your Senator voted and help us thank those who voted ‘Yea’ in favor of funding life-saving Duchenne research through the DOD:
YEAs -- 66
NAYs -- 32
Not Voting -- 2