Today Parent Project Muscular Dystrophy (PPMD) named Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children’s Hospital (Stanford), our eighth Certified Duchenne Care Center, recognizing the Clinic’s dedication to improving care for people living with Duchenne.
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 3,500-5,000 live male births.
Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children’s Hospital is led by John W. Day, MD, PhD. With over 25 years of experience in diagnosing, treating, and supporting patients with neuromuscular diseases, Dr. Day is involved in ongoing research defining causes, diagnosis, and novel treatments of genetic neuromuscular disorders. Prior to his arrival at Stanford in 2011, Dr. Day directed the Paul and Sheila Wellstone Muscular Dystrophy Center at University of Minnesota. Dr. Day serves as an advisor to many scientific committees researching neuromuscular diseases, including NIH’s Advisory Committees on Muscular Dystrophy and Muscular Dystrophy research.
Kathi Kinnett, MSN, CNP, PPMD’s Senior Vice President of Clinical Care and co-director of TDCI congratulated Dr. Day and his team at Stanford:
“Dr. Day has been a longtime partner in the Duchenne community, as an advocate for both optimal care in the patient community and as a leading researcher in muscular dystrophy. The clinical team he has assembled at Stanford is a shining example of the skill, compassion, and understanding we look for in certifying clinics. Congratulations and thank you to Dr. Day and everyone at Stanford Comprehensive Neuromuscular Clinic.”
From Dr. Day:
“Given PPMD’s preeminent role in the Duchenne muscular dystrophy community, we are honored that the Stanford Comprehensive Neuromuscular Program is being recognized as a PPMD Certified Duchenne Care Center. The Stanford Neuromuscular Team of experts is fully aligned with PPMD’s mission of conquering Duchenne’s effects on families, children, and adults; we look forward to linking arms with all PPMD Certified Duchenne Care Centers to attain our common goal of optimizing care, which is the foundation for both successful research of future treatments, and effective advocacy so those with Duchenne can lead more fulfilling lives today.”
In 2014, PPMD launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative (TDCI). PPMD will continue to award qualified centers the title of Certified Duchenne Care Center in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD continues to insist that all people with Duchenne receive comprehensive care.
To learn more about PPMD’s Certified Duchenne Care Center Program, visit PPMD’s website. For more information about Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children’s Hospital, visit the Stanford website.