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PPMD Helps Author Expanded Access Principles

Earlier this month, PPMD was proud to be among seven patient advocacy organizations who took a lead in laying out a joint set of principles to guide any efforts that seek to change the process of accessing unapproved therapies outside of a clinical trial, also known as compassionate use or expanded access.

The patient advocacy organizations include:

  • Alliance for Aging Research
  • American Cancer Society Cancer Action Network
  • Friends of Cancer Research
  • Leukemia and Lymphoma Society (LLS)
  • National Organization for Rare Disorders (NORD)
  • Parent Project Muscular Dystrophy (PPMD)
  • St. Baldrick’s Foundation

The joint set of principles were shared with Congressional leaders. 

Learn more about these principles.

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