Today Parent Project Muscular Dystrophy (PPMD) named Ann & Robert H. Lurie Children’s Hospital of Chicago (Lurie Children’s) our 14th Certified Duchenne Care Center, recognizing the team at Lurie Children’s for their innovative and multipronged approach to Duchenne care for people living with the disease.
Led by Medical Director Dr. Nancy Kuntz, Lurie Children’s boasts the Mazza Foundation Neuromuscular Program which offers specialized care to families and children with medically-challenging neuromuscular conditions.
“We are honored to be receiving this certification. This acknowledges the hard work of our specialists and clinicians who work tirelessly for this patient population.”
-- Dr. Kuntz, Professor of Pediatrics and Neurology at Northwestern University Feinberg School of Medicine
PPMD is thrilled to award the Lurie team certification for their commitment to the Duchenne community:
“The reputation of the neuromuscular program at Lurie Children’s has always been stellar. Dr. Kuntz is a true leader of the program and beloved by her patients. We are extremely happy to include them in our growing network of comprehensive Duchenne care.”
--Kathi Kinnett, MSN, CNP, PPMD’s Senior Vice President of Clinical Care and co-director of Transforming Duchenne Care Initiative (TDCI)
Lurie Children’s offers an advanced level of care for children suffering from muscular dystrophy, spinal muscular atrophy, and other neuromuscular disorders. The program also trains future specialists, provides state-of-the-art diagnostic and treatment resources, and advances cutting-edge research in this emerging field.
PPMD will continue to certify more clinics across the country throughout 2017, recognizing teams of physicians for their leadership in Duchenne care, which in turn will enable families to make the best choice for the care of their child.
About PPMD's Certified Duchenne Care Center Program
In 2014, PPMD launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative (TDCI). PPMD will continue to award qualified centers the title of Certified Duchenne Care Center in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD continues to insist that all people with Duchenne receive comprehensive care.
To learn more about PPMD's Certified Duchenne Care Center Program, visit PPMD's website.