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PPMD Continues Grant Supporting Clinic Liaisons for Certified Duchenne Care Center Program

PPMD is excited to announce that we will continue a grant program to help support our Certified Duchenne Care Center (CDCC) Program. The CDCC Program is a network of certified centers across the country that offers standardized comprehensive care and clinical services to people and families living with Duchenne. This grant will enable PPMD to continue to provide additional resources to improve patient care and patient recruitment for clinical trials through the centers.


PPMD is extraordinarily proud of our Certified Duchenne Care Center Program, started in 2014, that recognizes outstanding centers capable of providing comprehensive care and services to people and families living with Duchenne in agreement with the Centers for Disease Control and Prevention's care guidelines.

This continuation grant will allow us to continue our research liaison program, a program that has successfully increased enrollment in DuchenneConnect (PPMD's patient reported outcomes registry) and integrated clinical trial awareness into patient visits.

In addition, this grant has given rise to young adult/transition seminars, family support groups, the integration of Child Life into patient visits, enhanced electronic medical records to include real time physical therapy data, and many other institutional projects. It is one thing for PPMD to certify these outstanding clinics, but we also have the responsibility to ensure that they can maintain their high standard of care. This grant will help support the compassion and care that these dedicated centers expertly provide to our patients and families.

About PPMD's Certified Duchenne Care Center Program


Highly regarded in the Duchenne community, the CDCC Program has created a network of centers across the United States capable of providing increased access to comprehensive care and services to patients and families living with Duchenne. PPMD's CDCC Program recently announced its 17th Certified Duchenne Care Center, with plans to certify additional centers throughout 2018.


The program includes more than 400 medical providers, serving over 3,000 patients, and active involvement in 44 clinical trials that account for over 850 patients within the CDCC network enrolled. Plans are also underway to start providing tools to implement the certification of centers internationally by partnering with global advocacy partners and using the strict guidelines of the CDCC Program.


To learn more about PPMD's 17 Certified Duchenne Care Center Program and a map of currently certified centers, visit PPMD's website.

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