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Parent Project Muscular Dystrophy Names Seattle Children's Hospital Certified Duchenne Care Center

Fourth Clinic to Receive Certification

Seattle Children's Hospital was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne). Seattle Children's is the fourth center to be certified by PPMD, recognizing the hospital's dedication to improving care for people living with Duchenne. Established in 1980's, the Muscle Clinic at Seattle Children's Hospital is a multidisciplinary clinic that serves around 300 children and adolescents from across the Pacific Northwest; approximately 100 have Duchenne.

PPMD recently launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative. PPMD will continue to award other qualified centers the title of Certified Duchenne Care Center over the next several months in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD promises to insist that all people with Duchenne receive comprehensive care.

The Certified Duchenne Care Center Program was a direct result of PPMD's Transforming Duchenne Care Initiative (TDCI). Launched in 2012, TDCI was the coming together of health care providers and administrators from 17 institutions, parents, representatives from government agencies, and the pharmaceutical industry.

Like other certified centers – Children's Hospital Colorado, Nationwide Children's Hospital in Columbus, and Cincinnati Children's Hospital – Seattle Children's has been a pivotal partner with PPMD in the Transforming Duchenne Care Initiative. Susan D. Apkon, MD, serves as director of the Rehabilitation Department at Seattle Children's and is an authority in Duchenne care. Dr. Apkon has played an integral part in the TDCI and has been named a Top Doctor by Seattle Magazine consistently for the last several years.

PPMD's Vice President of Clinical Care Kathi Kinnett, MSN, CNP and co-director of TDCI remarks:

Dr. Apkon is a well respected leader in the Duchenne community and loved by her patients and their families. For years, she has made Duchenne care a priority. She and the Seattle Children's team are a perfect example of why PPMD created the Certified Duchenne Care Center Program – we want to celebrate centers that insist on comprehensive care for our community.

Dr. Apkon adds:

We are honored to be named a Certified Duchenne Care Center, underscoring Seattle Children's commitment to providing the highest-quality, comprehensive care to children with Duchenne. I am proud of the expertise and passion in which our team members care for children with Duchenne.

Kathi is excited about the continued growth of PPMD's Certified Duchenne Care Center Program, and the collaborative efforts it recognizes:

PPMD is thrilled to have such dedicated and passionate partners like Seattle Children's Hospital that are dedicated to the essence of PPMD's mission to end Duchenne.

To learn more about PPMD's Certified Duchenne Care Center Program, visit PPMD's website.

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