Parent Project Muscular Dystrophy is excited to name Duke Children’s Hospital & Health Center (Duke Children’s) a Certified Duchenne Care Center. Duke Children’s is the ninth center to be certified by PPMD’s Certified Duchenne Care Center Program, which supports standardized, comprehensive care, and services for all people living with Duchenne, and began certifying qualifying centers in March 2013. PPMD recognizes the development of Duke Children’s multidisciplinary care team and their dedication to providing the best care and services for people and families living with Duchenne.
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 5,000 live male births.
Duke Children’s Hospital & Health Center features the Duke Children’s Neuromuscular Clinic co-directed by Dr. Edward C. Smith and Dr. Richard M. Kravitz and coordinated by Jennifer Olson, RN, BSN. Both Dr. Kravitz and Dr. Smith specialize in pediatric neuromuscular disorders, including Duchenne.
“We are pleased that PPMD has recognized Duke Children’s Hospital & Health Center and our neuromuscular clinic as a leader in the diagnosis, care, and treatment of Duchenne muscular dystrophy,” Dr. Smith said.
“Duke has had a long commitment for the care of patients with neuromuscular weakness,” Dr. Kravitz said. “We look forward to working in partnership with PPMD in further improving the care and quality of life of boys and young men with Duchenne muscular dystrophy. We are committed to providing our patients and their families with quality, comprehensive care as we continue to develop the best and most innovative models for treating this disease.”
Kathi Kinnett, MSN, CNP, PPMD’s Senior Vice President of Clinical Care and co-director of Transforming Duchenne Care Initiative (TDCI), is excited to certify the center at Duke Children’s and says: “Dr. Smith, Dr. Kravitz, and their team have shown a true commitment to providing optimal comprehensive care to people with Duchenne in their community and beyond. They have created a wonderful facility and program that incorporates the patient and family voice, and where patients and families truly come first. We congratulate everyone on the Duke team and thank them for the dedication to the fight to end Duchenne.”
In 2014, PPMD launched the Certified Duchenne Care Center Program as part of its robust TDCI. PPMD will continue to award qualified centers the title of Certified Duchenne Care Center in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD continues to insist that all people with Duchenne receive comprehensive care.