Children's Hospital Colorado (Children's Colorado) was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne).
Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 3,500 live male births. Established in 1988, the Muscle Clinic at Children's Hospital Colorado is a multidisciplinary clinic that serves around 300 children, adolescents and young adults from across the Rocky Mountain Region; approximately 160 have Duchenne.
PPMD recently launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative. PPMD will award other qualified centers the title of Certified Duchenne Care Center over the next several months in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD promises to insist that all people with Duchenne receive comprehensive care.
The Certified Duchenne Care Center Program was a direct result of PPMD's Transforming Duchenne Care Initiative (TDCI). Launched in 2012, TDCI was the coming together of health care providers and administrators from 17 institutions, parents, representatives from government agencies, and the pharmaceutical industry.
Children's Colorado has been a pivotal partner with PPMD in the Transforming Duchenne Care Initiative, along with Nationwide Children's Hospital in Columbus, Ohio, which is the only other recipient of the Certified Duchenne Care Center Program. Dennis J. Matthews, MD, a neuromuscular specialist and chair of Pediatric Rehabilitation Medicine at Children's Colorado, has played an integral part in the TDCI. As a noted expert in Duchenne care, Dr. Matthews was involved in developing the measures now being used to evaluate neuromuscular care across the country.
We are very fortunate to have Dr. Matthews involved in this extremely important program. As a leader in the Duchenne community, his experience and expertise are invaluable. We are pleased to recognize the comprehensive program at Children's Hospital Colorado and support their efforts in continuing to provide outstanding care to patients and families living with Duchenne.
-- Kathi Kinnett, MSN, CNP, PPMD's Vice President of Clinical Care and co-director of TDCI
Children's Colorado is pleased to solidify this partnership with PPMD. We're dedicated to quality improvement initiatives that can advance the standards of care and quality of life for all patients and families affected by Duchenne.
-- Dr. Matthews, neuromuscular specialist and chair of Pediatric Rehabilitation Medicine at Children's Colorado
PPMD is excited about the continued growth of the Certified Duchenne Care Center Program, and the collaborative efforts it recognizes. PPMD is thrilled to have such dedicated and passionate partners like Children's Hospital Colorado that are dedicated to the essence of PPMD's mission to end Duchenne.
To learn more about PPMD's Certified Duchenne Care Center Program, visit PPMD's website.