Precious Quick-sand

 

Shins dotted purple and blue

With bruises of variable hue

Gastrucnemius swollen tight

AnkleFootOrthotics strapped on every night

Tummy out, shoulders thrown back

Waddling  like a penguin white and black

Balance is off, appetite is not

Damned Deflazacort  and that cake Grandma brought

Joyous green eyes, messy golden hair

Oh this is so not fair

Little brother is taller and runs so fast

There are not as many friends as in the past 

Wheelchairs and scooters are only cool for awhile

Nowhere to hide, no more denial

« Duchenne » it says on the file

Hold on tight to my hand

As we journey across this quick-sand

A beautiful life these 11 precious years

Both bliss and pain bring colorless tears

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Comment by Jessica Rownd on August 4, 2011 at 8:33am
Oh so true. :(
Comment by Trinh Nguyen on August 2, 2011 at 2:30am

Dear Andrea,

My eyes are full of tears when reading this.

Though late, I'd to say "Happy birthday to Simon".

Take care of him and take care of yourself.

With love,

Trinh

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