When a family hosts a fundraising event for Duchenne, we are thrilled and extremely grateful. When a family hosts the same event six years in a row, we are overwhelmed! This year the Pritchard family, along with their friends – Meghan and Jason Alpern – in Matthews, North Carolina will host the 6th Annual Brookhaven Family Run. Jake Pritchard is the star of the day though, as families, friends, and neighbors gather to run on behalf of Jake – and all people with Duchenne. Jake is a 9 year old who understands the importance of what his family is doing. He’s also fearless and not about to let Duchenne slow him down. Meet our Featured Voice for October and his great family.
Meet Jake Pritchard
Hey Jake! We're less than two weeks away from the Brookhaven Family Run. You all must be excited! Tell us a little bit about yourself.
I am 9 years old and in third grade at Antioch Elementary. I’m from Charlotte, NC.
What are some of your favorite things to do outside of school?
I enjoy playing with my friends and brother, going on trips, swimming and playing video games.
My favorite subject in school is Math. I haven’t decided what I’d like to be when I grow up.
You've got time to figure it out. What does it mean to have Duchenne? What do you tell people who ask you about Duchenne?
Having Duchenne means my muscles are different from other kids and that they get tired more easily. That’s pretty much what I tell my friends too.
Tell us a little about the Brookhaven Family Run. How would you describe it? What do you do on the day of the race?
It’s a fun day! Our good friends from Charleston always come up for the weekend, which is awesome. My good friend, Drew, who also has DMD, also comes. I mainly enjoy playing with my friends during the race and the good music. Last year was the first year we had an outdoor movie night on the Friday before the race. That’s definitely my favorite part now as we have popcorn, pizza, and even get to grill out s’mores!
Check out videos from past races:
It sounds like a perfect night! What does it mean to you to have your family working on a race on your behalf?
I think it’s really neat. I hope the race will help with finding a medicine to help my muscles.
Finally, if you could have dinner with any three people, real or pretend, living or deceased, who would you choose and why?
I would like to have dinner with Michael Jackson because I love his music. I would also like to have dinner with Cam Newton and Steve Smith with the Carolina Panthers. They are my favorite football players!