My Voice: Connor Vassigh, 6 ½ years old

Connor Vassigh is 6 ½ years old and his family have been among our most active participants in Coach To Cure MD over the last few years. Connor hosts a “Muscle Party,” inviting friends and family to have fun, party together, and enjoy a Saturday of football. He is a first grader who just wants to play video games, play with his dogs, and support scientists in their quest to find dystrophin. So as we mark five years of Coach To Cure MD on September 29, we celebrate one of our youngest teammates, our Featured Voice for September, Connor Vassigh. Meet Connor.

 

Meet Connor

Hi Connor! We know you are busy with the new school year and getting ready for Coach To Cure MD, but we’re hoping you can answer a few questions for us so the PPMD community can get to know you and your family. How old are you, what grade are you in, and where are you from?

I am 6 ½ years old, in first grade, from Houston, Texas.

 

What are some of your favorite things to do?

Connor (with help from his mom, Deanna): Connor loves playing with his brother Austin, being a big brother to Evan and Blake and, enjoying first grade with his friends at Yeager Elementary. Connor loves playing with his dogs Rillo and Goldie (which Connor calls “The Stinkys”), playing Nintendo Wii (especially Kirby’s Return to Dreamland, the Super Mario Series, Star Wars, and Batman Lego series) playing with his cars and Legos, and watching YouTube videos of his favorite video games and cartoons on the iPad.

 

The Stinkys sound awesome! What’s your favorite food?

Spaghetti with meatballs, Whataburger Cheeseburger, and ice cream

 

Nice! So Connor, what does it mean to have Duchenne?

If I run too much in gym, my legs hurt.  Sometimes my legs do not work very well.

 

Do you have other friends with Duchenne?

I have a few friends with Duchenne, but everybody at school has dystrophin.

 

Obviously when you have Duchenne, you have to go to the doctor more than other kids. What do you think of the doctor visits?

It is okay. It hurts when they stretch me really hard. Since we are not at home, we go to the zoo. (We see Drs. Wong and Rybalsky in Ohio)

 

Well the zoo makes everything a little better! Why do you like Coach To Cure MD?

It helps raise money so the scientists can find dystrophin. I do not know how you find dystrophin, but it sounds really hard.

 

It is hard, but there are some great scientists out there that are determined to find dystrophin! What’s your favorite part about Coach To Cure weekend?

I get to play and take raffle tickets out of the baskets.

 

Drawing the raffle winner is an important job. Who will be at your “Muscle Party”? Great name by the way!

My family and friends

 

For anyone reading this interview who may not understand why Coach To Cure MD is such an important event, why do you think it is important for them to help?

So I can have dystrophin

 

That’s a great reason. Finally, if you could have dinner with any three people, real or pretend, who would you choose and why? 

My friends with Duchenne because I do not get to see them very often.

 

Excellent! We hope you don’t have to wait long to have that dinner. Thanks for all you and your family do, Connor! You inspire this community to get involved!

 

Help support Connor’s Coach To Cure MD fundraising efforts. Visit his TeamRaiser page. 

To learn more about how you can become involved with Coach To Cure MD, visit our website or email Rachel Poysky.

 

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Will Nolan, Communications Director
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