Comment

Comment by Don Cooley on May 24, 2010 at 1:11pm

Congratulations ... thank you for sharing such happy positive news,,,

Kathi Cooley

Comment by Margaret Cohan on May 16, 2010 at 8:07pm

Joe did not live on campus. We did look into it but just around the time he started college he started to have to be turned at night (about every 2 hrs). I also worked on campus at the time in the Disability Resource Center for students with disabilities and they did have some dorma that would work out but we had a hard time finding personal care attendants that would work at night to turn him unless we wanted to pay an RN $40 an hour. Luckily we only live about 35 minutes from the campus. I only worked there until the end of his first semester. I am sure you have talked to the office on campus that helps students with disabilities and that should be very helpful. The only accomodation Joe got on campus was extended time for exams.He does use a laptop but his typing speed is slow hence extra time. Where he went to school the student would arrange with the Professor to drop off the exam at the Disabilities Resource Center and then Joe would take the exam there with a proctor. He also was able to get copies of someone's notes from the class. The Professor's would ask for a volunteer (without letting anyone know who needed the notes) and somebody always volunteered. His personal care assistants were other college kids.

Comment by Cheri Gunvalson on May 16, 2010 at 5:13pm

Thank you for sharing the great news! As our son with DMD is graduationg from HS and we are preparing for college what words for wisdom do you have as we start this journey? The closest college is 1 hr away so Jacob will be living on campus so we have much to set up and would appreciate what ever ideas you have.

Thanks, Cheri

Comment by Lisa Groeger on May 15, 2010 at 11:19pm

SWEET!!!!!!!!!!!!!

Comment by Jacobs Mommom on May 15, 2010 at 7:04pm

Congratulation to you and Joe! You both have every right to be proud:)

Comment by Brian Denger on May 15, 2010 at 3:31pm

Congratulations to Joe! This is a wonderful testament to your involvement and attitude Margaret. My oldest son Matthew is interested in Political Science. One more year of high school and he'll be following a similar path as Joe. Thank you for posting and best always!
Brian

Comment by Margaret Cohan on May 15, 2010 at 1:52pm

Joe is getting a BA in Political Science. He is going to starting working part time at our local Center for Independent Living (a non-profit advocacy organization for people with disabilities) while he gets ready to take his GRE's. He is hoping to go to Grad School. Another local university here has a program to get your MS to PhD and they offer scholarships that the selection is based on havng a diverse background. Last summer he interned at our Congresswoman's local district office. He was able to go to school using personal care attendants through a state waiver program and he got transporation from the Bureau of Rehab services. I actually was able to go back to work with the programs that helped him.

Comment by Ann Avery on May 15, 2010 at 1:31pm

So exciting! I remember when my son graduated with his BS, because I was right behind him getting my BA! Because of dmd we had to go to university together--I never would have graduated without him leading the way. Now, wait for the proud feeling when he gets employment!

Comment by Keith Van Houten on May 15, 2010 at 12:11pm

Congratulations! What did he study?

Comment by christine good on May 15, 2010 at 11:38am

Congrats!!! What a wonderful accomplishment. Does he realize how inspiring he is to all of us?

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