We just found out recently our sweet little angel who is 2 yrs old has duchennes .We were and still are scared all we can think is we cannot lose our sweet angel but i have hope and believe they will find a cure all i can think now is to keep my angel as healthy as possible in the mean time .My son is a happy, energetic ,loving soul he is the light in my life and he gives me strength i never knew i had .when im feeling sad and feel im about to break down he looks at me with his beautiful Angel eyes as if to say IM HERE MOMMY LOVE ME NOW CRY LATER he is my whole world and I WILL ALWAYS BE BESIDE HIM .....I WILL ALWAYS HAVE HOPE .....

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Comment by PPMD on January 19, 2011 at 9:49am
Welcome Farrah...please do not hesitate to call PPMD if you need anything. We're glad you found us and this great community!
Comment by farrah buenaobra on January 18, 2011 at 10:54pm
i am very happy i came across this site im learning alot already its like we are all a big family!! thanks everyone!!
Comment by Veronica E. on January 18, 2011 at 1:18pm
Hi, Farrah. Another mom of a little one here. Max will be three in April, and we found out he has DMD when he was three months old. While the pain of this diagnosis can be difficult to bare (I had a rare, but intense crying session just this morning), you will find a lot of support here.  The positive side of this journey is I have really seen the best of humanity in the past two years. People in our lives have bent over backwards to support us and raise funds for a cure!  I know the toughest part of this road is ahead of us, and I'm thankful to know there are parents here with boys at all different ages to give advice and support.
Comment by farrah buenaobra on January 18, 2011 at 9:05am
enjoy every precious second !!!   
Comment by Veronica Meizelis on January 17, 2011 at 8:50pm
I understand how you feel and I wish that all of us didn't have to go through with this but it's good to know that their are others that are going through the same thing. My son is 3 and I found out he had DMD when he was 2 months. I found out I was a carrier for it when I was about 4 months pregnant with him because my nephew got diagnosed with it. I still would not trade him for the world. All we can do is hold are head up high and hope that they will find something soon. Always enjoy the time that you have with him because time itself is a blessing.
Comment by farrah buenaobra on January 14, 2011 at 11:55am
Thanks  soo much penny .!! Its nice to be able to talk to other people who know what we are going through  my boys are my world as im sure your caleb is yours .I am not sure what the road ahead will bring but i know god hears all our prayers he sends us these sweet angels and  they teach us more then we can teach them ! thank u again .
Comment by Penny Hauer on January 12, 2011 at 12:51am
Hello Farrah Your boys are very nice looking boys and they love each other you will learn alot on the ppmd site never give up enjoy him while he is young and read any new findings the bad stuff comes soon enough.Caleb is 10 and everything is going south. I have silent screams cause if I fall apart he will so I Call on God morning noon and night to do and say the right thing.hope we can be friends.love and hope and friends will help.  welcome to the site and your boys are handsome my Caleb is too.

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