My 5 year old Grandson Addison was diagnosed with Duchenne at 2 years old. His Duchenne is progressing faster than we had hoped & being on Medicade he does not qualify for any test treatments that may slow down the progression. I dont think its fair that any potential treatment can be denied a child just because he is on assistance. shouldnt every child have the right to treatment? You be the one to tell him he can not be helped because of "red tape"! He is a wonderful boy & deserves to live a long healthier life if at all possible just like all the boys with this awful disease!
They ALL deserve the chance!